The Advisory Committee On Childhood Vaccines Votes NO To Tics As Vaccine Injury

Advisory-commission-childhood-vaccinesBy Teresa Conrick

Advisory Committee on Childhood Vaccines Votes No to Tics as Vaccine Injury

Tics used to be associated with a sole diagnosis of Tourette Syndrome.  Today, they are more frequently seen in Autism Spectrum Disorder, PANDAS, and PANS . Motor, vocal, and whole body - I see videos and discussions about them on the FB groups I frequent, as Meg has both an autism and PANS diagnosis.  I recently read on the World Mercury Project website, this article from Brian Hooker,  Ph.D., P.E. Please read it as he does an excellent job showing some important connections:

Between November 2013 and September 2014, I was in direct contact with the CDC Whistleblower, Dr. William Thompson. I recently wrote about my interactions with Dr. Thompson in an editorial piece that appeared in the winter 2017 edition of the Journal of American Physicians and Surgeons (22:119). One of the key issues that I discussed with Dr. Thompson was the relationship between thimerosal and tics, based on CDC’s own publications....

....A significant association between Hg exposure from thimerosal-containing childhood vaccines and a diagnosis of tic disorder (TD) has now been found in six epidemiological studies (Verstraeten et al. 2003Andrews et al. 2004Thompson et al. 2007Young et al, 2008Barile et al. 2012Geier et al. 2015).  The Thompson study states that, “The replication of the findings regarding tics suggests the potential need for further studies.” 

Very recently, there was a glimmer of hope that at least one Federal Agency was going to take the relationship between thimerosal exposure and tics seriously. In December 2017, the Advisory Committee on Childhood Vaccines(ACCV), the body that determines which vaccine injuries warrant compensation from the National Vaccine Injury Compensation Program (NVICP), considered adding tics as an injury to the “vaccine injury table” for which compensation should be received. This was on the basis of a separate citizen’s petition to allow tics to be added to the “table” and thus qualify for compensation....This was most likely “a plan” to avoid a flood of tic claims in the NVICP. Surely, the ACCV understood that tics are a common feature in autism(occurring 4 times more frequently in autistic children than in neurotypical).

Different year - same bullshit it seems.  Solid research yet nothing helpful seems to come from it.

I remember this study that Dr. Hooker shared, Mercury intoxication presenting with ticsas I had found it years ago in researching about Meg's symptoms:

Abstract: A 5 year old Chinese boy presented with recurrent oral ulceration followed by motor and vocal tics. The Chinese herbal spray he used for his mouth ulcers was found to have a high mercury content. His blood mercury concentration was raised. Isolated tics as the sole presentation of mercury intoxication has not previously been reported. 

I personally find this fascinating as Meg has presented with tics on/off since age 3.  Since tics are 4 times more prevalent in autism spectrum disorders than in non-affected children and young adults, it is intriguing to look at patterns to figure out what is happening.  The brain , of course, is a well-known recipient to toxic exposures but science is also reporting on the huge impact of the gut microbiome on the brain.  Because Meg had numerous vaccines with Thimerosal, the mercury preservative, and has both autism and the autoimmune disorder, PANDAS/PANS, could there be connections in any of this? 

Autism can present with tics, as this heartbreaking Youtube video shows but tics are also a telling symptom in PANDAS/PANS https://www.youtube.com/watch?v=UU3rmsLV_6w.  Very similar and increasing in numbers.

Let me present research that I have been reading that threads some of this together:

Likely Connection Between Obsessive-Compulsive Disorder and the Gut Microbiome  

It is also becoming evident that the intestinal microflora regulates brain function and behavior, and may thus influence the pathophysiology of various neuropsychiatric disorders including anxiety, depression, and autism.3,4 

Continue reading "The Advisory Committee On Childhood Vaccines Votes NO To Tics As Vaccine Injury" »


HHS establishes a new Conscience and Religious Freedom (CRF) Division within its Office for Civil Rights, holds livestream today, Jan 18th at 10:30am EST.

by Ginger Taylor

Screen-shot-2017-07-06-at-9-08-46-pm4HHS establishes a new Conscience and Religious Freedom (CRF) Division within its Office for Civil Rights, holds livestream today, Jan 18th at 10:30am EST. The religious rights of families in Mississippi, California and West Virginia, along with health care workers and military members, have been violated by demands that they be vaccinated against the conscience of those who hold a pro-life view, and do not want to receive vaccines made from aborted fetal cell lines.

Today HHS gives us an official channel to protest this violation of the 1st Amendment.

"HHS establishes a new Conscience and Religious Freedom (CRF) Division within its Office for Civil Rights (OCR) specializing in enforcement of and compliance with laws that protect conscience and the free exercise of religion, and that prohibit coercion and religious discrimination."

https://www.hhs.gov/conscience

WATCH LIVE 10:30 am EST: The #HHS Office of Civil Rights announces new Conscience and Religious Freedom Division to address religious discrimination

https://www.hhs.gov/live/live-1/

"Filing a Conscience or Religious Freedom Complaint If you believe that a covered entity discriminated against you (or someone else) on the basis of conscience or religious freedom, coerced you to violate your conscience or religious beliefs, or burdened your free exercise of religion, you may file a complaint with the Office for Civil Rights (OCR). You may file a complaint for yourself, your organization, or for someone else."

https://www.hhs.gov/conscience/complaints/filing-a-complaint/index.html

It is time to organize a formal complaint process for those who have both been forced into injecting these products, and for those who have been tricked into receiving these products, because they were not given informed consent.


American Teens Eating A Big Bowl of Stupid: Laundry Detergent

Retro stupidBy Kim Rossi

There's no kind way to say this, so I won't attempt to hide my scorn, not at the kids but the system.  American kids who are eating Tide laundry soap packets are not well. Yes, kids will be kids. Kids do stupid things. I did stupid things. Life threatening even. I did not eat laundry soap. Period. End of story.  I had an instinct that told me, "This will kill you."

I see a lack of basic critical self-preservation skills in this new Tide Challenge. My daughters with autism have almost no self-protective skills. It's part of the their disability. Eat a Tide pod is within the realm of cognitive disability.

When I was a kid, we used to belt out "The Comet Song." I'll bet you know it yourself. Eating detergent was a joke even a 6 year old kid could understand. We also used to sing "Glory Glory Hallelujah, teacher hit me with a rulah (hey, I grew up in BAHSTUN Massachusetts so the rhyme worked perfectly) I hid behind the door with a loaded 44 and the teacher is no more." That was before school aged males were prone to mass school shootings.

The kids are not all right.  I'm sure the AAP will come out with a grave statement of concern any moment. Remember when Katie Wright wrote about their response to the cinnamon challenge a few years ago?  Perhaps if we weren't over vaccinating our kids into oblivion they'd have a lot fewer challenges.


James Lyons-Weiler PhD "New York Times Has Lost It"

James Lyons WeilerNote: Vaccination rights continue to be a major issue facing Americans - despite most having no inkling or care about the topic. Until someone they love is vaccine injured. Thanks to James Lyons-Weiler for this article on the state of the Golden State.

Clearly, The New York Times has lost it.

STATES ACROSS THE US are working to secure patient’s – and parents’ rights to informed consent.  Rights are assured in 49/50 states.  Since mandates first came into existence, over 90 years ago, state legislatures found it wise to respect religious and philosophical exemptions for waivers for school attendance.

I won’t name which states are finding it necessary to work on legislation to re-assert patient rights because those who need to know are working on it, and I won’t broadcast these initiatives and give opponents information that can use to curb these developments.

In one state, state legislators are demanding that they, not the health department, have the final say on which vaccines are approved for use on patients in their states.  Why?  Because they, not appointed officials, answer to the electorate – and their constituents are taking up a lot of time in their offices educating them on vaccine risk.

Continue reading "James Lyons-Weiler PhD "New York Times Has Lost It"" »


Hep B Vaccination at Birth May Not be Necessary in India, Says Study

Indian clinicBy Jacob Puliyel MD MRCP M Phil

A large multi-centre study done in North India shows that many newborns are protected at birth by natural antibodies to Hepatitis-B and so Hep-B vaccination at birth is not necessary.

The study funded by the Indian Council of Medical Research (ICMR) lends support to the government's pragmatic approach to vaccinate babies born at home starting at six weeks instead of at birth.

The study, whose findings have been published in the Indian Journal of Pediatrics, was done to look at whether Hepatitis-B vaccination at birth was crucial for India.

"We found birth dose was not needed as infection rates were the same regardless of birth dose," says Jacob Puliyel the study's primary author and a pediatrician at St. Stephens Hospital in Delhi.

Hepatitis-B virus (HBV) can cause chronic hepatitis, liver cirrhosis and lead to hepato-cellular carcinoma (HCC) in susceptible persons.

Most babies are naturally immune to Hepatitis-B infection due to passive transfer of antibodies from the mother.

India started vaccinating children against Hepatitis-B in 2011. It is given at birth to babies born in hospitals. However, because many babies are delivered at home, outside of healthcare settings, the government introduced the pragmatic programme schedule of HBV vaccination, wherein the vaccine is given starting at six weeks to children born outside such health-care settings.

Continue reading "Hep B Vaccination at Birth May Not be Necessary in India, Says Study" »


Professor Chris Exley on the Deaf Ear Turned Toward His Autism Aluminum Research

Not listeningNote: Chris Exley Professor in Bioinorganic Chemistry Keele University Honorary Professor, UHI Millennium Institute Group Leader - Bioinorganic Chemistry Laboratory at Keelepublished expresses what so many brave scientists before him have encountered when their results challenge the status quo.  He calls the refusal to cover his science "the din of silence." We know it's a playbook straight out of the age of Big Tobacco. Cover up. Shut up. Shut down.  Thank you, Professor Exley.

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By Professor Chris Exley

Sometimes silence can speak volumes. In December 2017, we published in a highly reputable journal our research suggesting a link between human exposure to aluminium and the aetiology of autism.

The research showed that individuals who died with an Autism Spectrum Disorder (ASD) had very high levels of aluminium in their brain tissue. However, the standout observation was not necessarily the amount of aluminium but its predominant location in non-neuronal cells and especially microglia.

In an interview immediately following presentation of this research, I expressed my opinion that these new data had forced me to change my mind about a putative role for aluminium in autism.

I was aware of the emotive nature of our research and especially as I knew that it would bring into focus a possible link between aluminium adjuvants in vaccines and autism, though this link was not discussed in the paper. However, I am not sure that I was prepared for the nature of the response to our research. Perhaps the most deafening response has been the tsunami of silence perpetuated by all mainstream media, almost globally! Compliant with this has been my own University that did not even deem the research ‘worthy’ of a mention in its own weekly news outlet. When one considers the nature of much of the science that makes headline news one is left wondering what it is about a link between aluminium and autism that is not deemed newsworthy. Perhaps mainstream media were unaware of the research.

Continue reading "Professor Chris Exley on the Deaf Ear Turned Toward His Autism Aluminum Research" »


Young Woman with Asperger's "Discharged" From Baltimore Hospital into Frigid Cold

University-of-maryland-medical-center-officeNote: Below is a rotten story of the unceremonious discharge of a 22 year old woman with Asperger's  onto the freezing streets of Baltimore, Maryland.  At age 22, unless her mother had guardianship, the hospital did not have to share information by law. However, human decency might have been an option. If you have a child with autism and even Asperger's, please consider the legal means  available post age 18 so that you can continue or make or assist with legal, financial and medical decisions for your child.  I'm reminded of a scene from my favorite movie, Parenthood, with Steve Martin. "Friends!?? Friends slow down. They even stop!" (See below.) This hospital was no friend. Expect more of this callous treatment as the medical community is PURPOSEFULLY unprepared to care of our loved ones. Note, the woman is 22, not 42, not 52. 22 years old. The epidemic has started to age out. Here we go...

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From Fox News Baltimore

Baltimore hospital video fallout: Woman who identifies as patient's mom says she was mocked by security

A woman who says she’s the mother of a patient dumped on the street outside a Baltimore hospital in frigid weather this week says she was laughed at and stonewalled by hospital staff while trying to find out about the status of her daughter.

The mother, who spoke to CBS News and identified herself only as Cheryl, said her daughter, Rebecca, is “not deaf, not a prostitute, not a drug addict,” but suffers from bipolar disorder and Asperger’s syndrome. The woman was filmed moaning and pacing around outside the University of Maryland Medical Center Midtown Campus on Tuesday after being discharged by workers, in a video that has gone viral.

"The hospital wasn't being helpful," Cheryl told CBS News. "I called the security department [and] they laughed at me. When I told them, 'That's my daughter in the video and I just need to find out if she's in the hospital,' they laughed at me. Every person that I talked to at the hospital either hung up on me or told me to email the hospital, and that everyone was going to tell me the same thing."


Josh Mazer: Ironclad case for HPV vaccination isn't there yet

GardasilNote: Thank you to DC area AofA friend and supporter Josh Mazer for writing this op-ed about HPV vaccine. Please take a moment to click into the newspaper so that the clicks register your interest in the topic and leave a comment as well. This is one way we can boost coverage of the vaccine safety issues we all face.  Newspapers like clicks. From this we know! :) Thanks.

Cancers caused by human papillomavirus (HPV) are devastating and affect men and women alike. Because the disease is sexually transmitted, and the preventive HPV vaccine is recommended for boys and girls starting as young as age nine, parents might have concerns.

I attended with my 12-year-old daughter the Anne Arundel Medical Center Smart Women Lecture Series Thursday at Belcher Pavilion on the HPV vaccine. We left with more questions than answers.

The panel consensus is that virtually all youngsters receive the HPV vaccine. The CDC and American Cancer Society say that there will be 12,000 cervical cancers diagnosed in the United States each year, among a population of 170 million women. The chances of my daughter being diagnosed in any given year are 12,000 out of 170 million, which works out to .007 percent. The odds of her not being diagnosed in any given year, by the same math, is 99.9929 percent.

Given the relatively high cost of each shot, either two or three are required, and the extremely low probability of the diagnosis, I question whether a mass vaccination program to prevent these cancers, as horrible as they are, is the wisest and best use of limited resources. Would the same money spent countering opioid addiction, or drunken driving in Anne Arundel county perhaps save more lives? Read more at Capital Gazette here.


LabCorp Patents Test for Autism

LapCorp patent
Note:  LabCorp has received a patent on a method for diagnosing autism spectrum disorders. 

Abstract:
The invention generally relates to methods for diagnosing autism spectrum disorders. In certain embodiments, the invention provides a method for diagnosing presence or increased risk of developing an autism spectrum disorder in a subject.

Type: Grant
Filed: March 17, 2014
Date of Patent: December 5, 2017
Assignee: Laboratory Corporation of America Holdings
Inventors: David Michael Margulies, Mark Firman Bear

Read about the patent here.

The method, invented by David Michael Margulies and Mark Firman Bear of Massachusetts, involves taking a tissue or body sample from a subject and then conducting a test to identify variant sequences in the subject’s genetic code, which may signify “the presence or an increased risk of developing autism spectrum disorders.” Testing can be done on children and fetuses, according to the patent.

The method is stated to aid in the diagnosis of five autism spectrum disorders, all of which fall under the umbrella of pervasive developmental disorders: autistic disorder, Asperger’s disorder, childhood disintegrative disorder, Rett’s disorder, and nonspecific pervasive developmental disorders.

The method claims to have multiple applications, each of which provides insight into the biological basis of autism spectrum disorders through different lenses.

Continue reading "LabCorp Patents Test for Autism" »


Best of: I Have Come to Realize

Sun burn handNote: Cathy is enjoying a weekend with her beautiful family.  We ran this post in May of 2013.

By Cathy Jameson

A few years ago, a friend tagged me in a note on Facebook called “I Have Come to Realize”.  Every sentence began “I have come to realize that...” and included about thirty random ideas.  My friend had filled in her realizations and asked that I copy/paste the note and offer my own.  It was a neat activity that had nothing to do with autism, so I quickly followed the directions.  Copying the outline, I filled in my answers and then shared the note with my friends. 

I’ve since deleted the note off of Facebook, but I saved the answers in my writing file.  I did this to capture my thoughts in that moment of time hoping to learn from them in the future.  I come across that file every now and then and always make time to reread it.  Some of the entries make me laugh while others give me an insight to the fears I had at the time.  Many of those revolved around Ronan.  Some of them are the same fears that I still have today. 

With those worries never too far from my thoughts, I experience mixed emotions when I open the file.  I feel trapped in that some things haven’t yet changed for the better.  I also feel a bit stronger knowing that I have at least admitted that I am afraid. 

From several years ago:

- I HAVE COME TO REALIZE that I have lost...a lot of time by researching instead of doing or just living.

- I HAVE COME TO REALIZE that when I get on Facebook...I escape to my past since I'm afraid of the future.

- I HAVE COME TO REALIZE that my friends...are more of a lifeline that I imagined.

- I HAVE COME TO REALIZE that this year...is one full of questioning but also of accepting.

- I HAVE COME TO REALIZE that I'm totally terrified...of many things now that I'm a Mom.

Continue reading "Best of: I Have Come to Realize" »


Best of: Standing Orders and How they Affect Adult Vaccination Rights

Vax for Adults
Note: On Thursday, Mary Romaniec moderated a panel for Vaccine Choice Massachusetts featuring Dr. Andrew Wakefield and the movie The Pathological Optimist. One of the topics covered during the Q&A was standing orders.  We're running Mary's article  again to revisit this important topic.

By Mary Romaniec

State and local health departments, along with large medical practices, are poised to increase adult immunization rates by implementing policies and procedures that support a program known as “Standing Orders.” 

At a recent event held in Boston, a small group of demonstrators stood outside the Westin Copley hotel where the Take A Stand™: Use Standing Orders to Improve Adult Immunization Rates workshop was taking place.  The workshop is described as “a unique national program being conducted for a limited time by the Immunization Action Coalition (IAC), supported by a sponsorship from Pfizer”.

If IAC sounds familiar it is because they are the group that boasted how they used their listserv to get “Vaxxed” banned from Tribeca Film Festival.

Demonstrators explained the problem is that Standing Orders is a form of collusion and corruption to push pharmaceutical interests, spreading it out across the country via the kind of workshops held in Boston.  In other words, they are going straight to health departments and doctor practices to show them how to increase adult immunizations rates via on file Standing Orders to vaccinate according to the CDC adult schedule (flu, shingles, boosters).  The move essentially shuts down public knowledge and discourse on the subject by going around state legislators or open forums for discussion. 

According to Dr. L.J. Tan from IAC, “Our challenge is adult immunization rates are very poor.  Standing Orders allow a practice to routinize administration of vaccines,” Tan said. 

By routinize, Tan clarified that it meant the practitioner, or someone on staff, can have a conversation about the need for boosters or other adult vaccines.  However, the caveat in the details is that it means your personal physician can write in your medical charts a “standing order”, which can then be done against your knowledge or will in any hospital setting. 

What happens in hospitals?

When you enter any hospital for an emergency or surgery, you sign a bunch of forms prior to them treating you or a loved one.  One of the things you consent to is to be treated with “biologics”, which is a code word for a wide range of products including vaccines.  So if your regular physician has in the chart a standing order (even if you don’t know they wrote it) you could be given a vaccine against your will or knowledge.  Informed patients may write “No vaccines” on any admittance form, but what happens if there are contradictory standing orders from your physician?  Who would be accountable if they vaccinate an unconscious patient who had objected in writing? Truthfully, probably no one. 

What medical professionals know that legislators don’t

Continue reading "Best of: Standing Orders and How they Affect Adult Vaccination Rights" »


Autism Rate Jumps by Richard Moore

Lakeland times
Note: Investigative reporter Richard Moore of The Lakeland Times featured AofA's Mark Blaxill in this recent article. A second article that ran yesterday is also excerpted below, titled, Autism numbers spike: The latest call to action

By Richard Moore

Autism rate jumps to 1 in 36 U.S. children ASD spikes by 23.2 percent in two years in parental survey

In the highest reported percentage ever for autism prevalence in the United States, a recently released survey of parents by the National Center for Health Statistics (NCHS) puts the rate for autism spectrum disorders (ASDs) in American children at 2.76 percent, or 1 in 36.

A November 2017 data brief reporting the new numbers culled information from the National Health Information Survey (NHIS). The survey was conducted 2014-2016.

According to the NCHS, the new numbers do not represent a statistically significant increase in autism prevalence over the three-year period. In 2014, the rate was 2.24 percent for American children.

Looked at another way, though, the 2.24 percent number placed the autism rate at about 1-in-45 children; the 2016 figure represents an autism rate of 1-in-36 children. The prevalence rate for 2015 was 2.41 percent, or 1-in-41.5 children.

The November 2017 data brief provides the latest prevalence estimates for diagnosed autism spectrum disorder, intellectual disability, and other developmental delay among children aged 3-17 years from the 2014-2016 National Health Interview Survey, the brief states.

"Estimates are also presented for any developmental disability, defined as having had one or more of these three diagnoses," the data brief states. "Prevalence estimates are based on parent or guardian report of ever receiving a diagnosis of each developmental disability from a doctor or other health care professional."

Differing numbers

Both the 1-in-45 number and the 1-in-36 rates are higher than the official CDC (Centers for Disease Control) autism rate of 1-in-68 children.

The official rate was released in the spring of 2016; new numbers should be released in the next several months. The 2016 numbers were unchanged from those released in 2014, suggesting a leveling off in the increase in the rate of autism.

Continue reading "Autism Rate Jumps by Richard Moore" »


Wall Street Journal Joins Mother Jones in Attacking Oprah Winfrey for 11 Year Old Show on Vaccines

SPEAK TRUTHMother Jones and The Wall Street Journal don't cross paths often. But when it comes to the Pharma/Government media noose as regards the vaccine autism topic, they are comfy, cozy bedfellows following orders from.... somewhere.   The American public heard Oprah talk about "Speaking your truth" as it relates to sexual assault and the "me too" message that women do not have to put up with shaming, violence, or any sort of influence of in order to have success. And so, the pharma media juggernaut has gone into full discredit mode.  Why on earth would these two publications dredge up an ELEVEN year old TV episode of Oprah's talk show? 

Can the average American see the immediate reaction to anything that "threatens" free thought regarding vaccination safety? Pharma is like Kim Jung Un in North Korea.  Deny, lie, shut down any perceived opposition. Except their button is millions of syringes going into our kids. The world applauded Winfrey's message. And so do we. I, as a woman, as a woman who teaches self defense to others, as a woman who has vaccine injured children, I applaud her message. SPEAK THE TRUTH EVEN IF YOUR VOICE SHAKES.  The WSJ calls Winfrey's message "bromides," the definition of which is a trite and unoriginal idea or remark, typically intended to soothe or placate.  

Lord, I need a Bromo Seltzer after reading even the snip of the article that you can see from the WSJ online. We do not and will not pay for a prescription (oops, I mean subscription) to this paper.  I hope Winfrey gets very, very angry and speaks more truth.  Kim

Oprah’s ‘Truth’ and Its Potentially Deadly Consequences
She gave Jenny McCarthy a platform to promote the discredited idea that vaccines cause autism.
By Julie Gunlock
Jan. 10, 2018 6:47 p.m. ET

Former daytime television superstar and rumored Democratic presidential candidate Oprah Winfrey won the Cecil B. DeMille Award at Sunday night’s Golden Globes. In the “complicated times” we live in, she said during her acceptance speech, “speaking your truth is the most powerful tool we all have.”

While such bromides may play well with an audience of entertainers, Ms. Winfrey’s applause lines should be a warning to those who take her political ambitions seriously. She built.....


Thinking Moms on Whether Facebook is Broken

Facebook-like-button1NOTE: The very idea that social media is "broken" because it allows those of us with vaccine injured children to have a conversation about the topic is laughable. Social media has changed the world - altered politics - tumbled careers - aaaahhhh, now I get it.  This is in line with the current Oprah bashing going on after her "speak the truth" message at the Golden Globes.  In America there is only one topic - ONE - that is verboten, and that's vaccination injury.  You can be SWMSWFCBLGBTABCDEFGHIJKLMNOPQRSTUVWXYZ but you can NOT be someone who questions vaccines. Thanks to Thinking Moms Revolution for this terrific post excerpt.

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This was written in response to an opinion piece published in the Washington Post entitled “The Anti-Vaccine Movement Shows Why Facebook Is Broken.”

I think it’s rather amusing that everyone in the mainstream media and medical community spends so much time (and wastes so much money) trying to analyze why we are the way we are, as opposed to just asking us. The idea that we have some secret network, where we share information and plot to destroy the world (all the while balancing caring for our special-needs children, navigating services, attending IEP meetings, and driving to therapies and medic appointments) is rather funny.

There is no code word for anti-vaxxers (or their groups). Some of us are against all vaccines, some against the corrupt science, some against one vaccine or ingredient, some who just believe in safer schedules or who fight for informed consent and most allow anyone to be a part (in fact wish everyone would stand up for a better system).

Continue reading "Thinking Moms on Whether Facebook is Broken" »


Mother Jones Writer Ridicules Oprahs Free Speech Stance on Vaccination Conversation

20180109-oprah
Sthanlee Mirador/Sipa USA via AP

GOOD GRIEF: This is how fast and furious the vaccine injury denialists (aka pharmaceutical industry) can step on the neck of anyone it fears could call out their bullsh*t.  Oprah Winfrey is pretty much an American treasure.  The mere mention of her as a Presidential candidate must have riled up the troops to get writin' and fightin' and discreditin' Winfrey for having the audacity to allow many of our friends - including AofA's own Katie Wright - to discuss vaccine injury and autism on her talk show more than ten (10!) years ago.   Read a snip of Mother Jones writer Megan Jula, a 2016 college graduate, which puts her at maybe 24 years of age, below. Her tone is classic "debunkisms" fed from the pharma playbook.  Of course, Ms. Jula has a damn good chance of having a child of her own with vaccine injury and perhaps even autism. We'll be here if she needs us. We hope she  never does. We don't roll that way . We don't wish ill on others as so many have wished our kids to die from"vaccine preventable" disease. And we never will.

I hope Oprah takes note of the instant attack. We want a world where 1 in 36 kids does not hear "And YOU get autism! And YOU get autism! And YOU get autism!!!"

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From Mother Jones

Calls for Oprah Winfrey to run for president may have begun as a joke, but in the wake of her rousing Golden Globes speech, speculation has swirled. CNN even ran live updates on a potential “Oprah 2020” campaign on Monday. President Donald Trump told reporters he doubts Winfrey will run, though he also declared he would win a campaign against her. 

Some progressives welcomed the idea that Winfrey, a popular media icon whose star power could eclipse even that of Trump, might take on the president in 2020. Winfrey, who endorsed Barack Obama and Hillary Clinton, is well know for championing a wide range of important causes, such as promoting reading and founding the Leadership Academy for Girls in Johannesburg, South Africa. But there’s one area in which Winfrey and her would-be opponent are surprisingly alike: Both she and Trump have helped spread the inaccurate—and dangerous—myth that vaccines cause autism or other health problems.


Cancer Rates Drop Mostly Due To Smoking Cessation

ToeNote: I came across an article about cancer deaths and thought it worth sharing for your opinions. Cancer deaths are said to be down in America. Of course that's good news. Except that I know far too many young Moms in their 30s and 40s with breast and thyroid cancer, and brain cancer has taken several acquaintances over the last five years.

Now, imagine if the bulk of funding for cancer had been purely in genetics over the last several decades because the cigarette industry continued to win its battle to hide the facts about smoking safety.  Sound familiar? How bad would it be (hint, not at all) if we found the environmental cause(s) to what we call autism in 2018 and watched rates plummet? Would our kids never have been born? Of course not. They'd still likely have quirks we love, intelligence we respect and maybe even subtle traits we might identify as "spectrumy." But they wouldn't be disabled, like my girls.

See that photo? That's my Bella's painful, raw toe.  I noticed this wound on both of her feet on Sunday. I have no idea which shoes did this to her feet. Shoes that I have been putting on her feet every day.  She's had behaviors in school.  "Aggression." Ha ha.

Maybe her feet hurt like hell and she couldn't tell anyone?

How bad would it be to get rid of THAT?  Kim

Cancer deaths have fallen yet again, thanks mostly to huge declines in smoking, the American Cancer Society said Thursday.

More than 2.3 million people have not died of cancer since 1991 who otherwise would have if cancer rates had remained unchanged, the group said in its annual report on cancer.

Yet 4,700 Americans are diagnosed with cancer every day and cancer remains the No. 2 cause of death in the United States, right behind heart disease.

Related: Sometimes, cancer is random

“A decline in consumption of cigarettes is credited with being the most important factor in the drop in cancer death rates,” said Dr. Otis Brawley, chief medical officer of the American Cancer Society.

“Strikingly though, tobacco remains by far the leading cause of cancer deaths today, responsible for nearly three in ten cancer deaths.”


Generation Rescue: 5 Ways to Reduce Exposure to Toxins in Your Home

Gen Rescue SquareNote: Thanks to our sponsor Generation Rescue for ideas on how we can all increase our health safety at home.  Tops are from Dr. Peter Koslowski.  Dr. Kozlowski is a Family Practice M.D. who specializes in Functional Medicine. He has trained with many leaders in the field such as Dr. Mark Hyman, Dr. Deepak Chopra, and Dr. Susan Blum. He focuses on nutrition, gut health, and underlying environmental triggers to create individualized treatment plans.  We encourage you to visit the GR site regularly for actionable info for the entire family.

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Team GR: Environmental detox is important for all families to consider. We asked Dr. Peter Kozlowski, one of our favorite natural medicine doctors, for the best ways to eliminate those pesky toxins lurking in our home.

Written by Dr. Peter Kozlowski, M.D.

Our homes are where we spend most of our time and a place where we can minimize our exposure to toxins.

Toxins come in all forms and sizes. We can create toxic burdens in our bodies through what we eat. High sugar diets cause high insulin, which creates metabolic toxicity.

Toxins can be chemical such as heavy metals or mycotoxins, biological such as bacterial, viral or fungal toxins, physical such as radiation or trauma, or psychological such as chronic stress or toxic relationships.

Some of these toxins are evident. Others are not so evident and quietly burden our bodies.

Here are five things you can do today to reduce your exposure to toxins in your home.

Focus on the air

Dust in the home has the highest percentage of air born pollutants. Get a HEPA/carbon air filter to control dust.

The carbon cleans gases, fumes, and smokes, while the HEPA cleans particles greater than 0.3 microns. Use a HEPA vacuum (air sealed) frequently, focus on the bedroom.

Bring down pollutants by opening your windows, but turn off your filter while open. Leave your shoes outside, they carry pesticides. Remove wall to wall carpeting, which traps toxins from our shoes, and is a source of flame retardant.

If you have poor ventilation, carbon monoxide from the furnace or hot water tank could be contaminating the air in your home. Faulty plumbing could lead to air contamination from sewer gas. If you smell or suspect mold get a mold inspection.

Finally, chimneys should be airtight glass and have a direct vent.

Continue reading "Generation Rescue: 5 Ways to Reduce Exposure to Toxins in Your Home" »


Anne Dachel On the Shift from Teaching to Trauma Management in Our Schools as Special Education Needs Grow

Abadnonned schoolBy Anne Dachel

As we begin a new year, the stories continue. Schools everywhere in the English-speaking world are trying to deal with children with special needs. Regular education is looking more and more like special education. Accommodations for children who can’t learn typically, who can’t focus, and who can’t behave in a classroom are the order of the day. Schools are dealing with things as best they can. They’re trying a host of interventions and adjustments to help the situation, and that’s why we’re seeing so many stories about schools adding in-school mental health services, behavior coaches, sensory/de-escalation rooms, later starting times to reduce anxiety, therapy dogs, fidget toys, flexible seating, mindfulness calming practices 

Why are so many schools doing these things? Why now? How has education managed without them in the past? These are questions no one is asking. Instead, we’re solemnly told that new research shows that children who can’t function in school are that way because of “Adverse Childhood Experiences” (ACEs) or trauma inflicted on them AT HOME. Teachers are being trained to recognize trauma-injured children. It’s a neat little revival of the old “refrigerator mom” blame game that was used for years to explain autism in a child.

We’re also being told that bullying and the impact of social media is behind behavioral problems in kids today.

The truth is childhood has changed. Our kids are both chronically ill with a host of physical problems as well as learning and behavioral issues. The proof is there for all to see in countless reports everyday on Google News.

The stories I’ve included here are from a much larger collection, so this is but a glimpse and they should be scaring everyone.

This is now the new norm in schools.

Nov 27, 2017, (UK) Coventry Telegraph: Why this mum has decided to home-educate her autistic daughter –Eleven-year-old Emily says she found school confusing and overwhelming and would become angry and lash out                                                                                                                

It revealed a 57% increase in children with a statement, or equivalent, being educated at home.

There has also been a rise in the number of children with recognised needs, but without a school place.

Almost 1,000 children with this highest level of special needs are waiting for a place.

Nov 27, 2017, Youngstown (OH) Vindicator: Rich Center launches $6M campaign          

The Rich Center has provided hundreds of area families with education and treatment for children with autism, but it needs to expand its capacity to meet the growing need…

Nov 27, 2017, Edmond (OK) Trumpet:  Elementary Schoolteachers Flee Classroom Violence

While the problems with student violence are particularly bad in Harrisburg, this is a national problem. The National Center for Education Statistics released its 2016 Indicators of School Crime and Safety report, finding that “10 percent of elementary teachers and 9 percent of secondary teachers reported being threatened by a student from their school in 2011–12.”

Nov 27, 2017, KMA Radio, Des Moines: Study: Iowa kids face greater challenges than others

A new study finds Iowa children face more Adverse Childhood Experiences or ACEs than kids in many other states. ACEs might include the death of a parent, being a victim of violence, or living with someone with a drug or alcohol problem. …

ACEs can have serious, long-term impacts on a child’s health and well-being, Davis says, by contributing to high levels of toxic stress that derail healthy physical, social and emotional development.

Continue reading "Anne Dachel On the Shift from Teaching to Trauma Management in Our Schools as Special Education Needs Grow" »


From Radium Girls to Mercury and Aluminum Kids

Radium_DialBy Kim Rossi

Captain's Log. Stardate January 8, 2018. "We're exhausted. Trapped. Not sure we'll ever leave this planet called.... snowed in."

I'm loopy, friends. We had a Nor'Easter Blizzardy thing on Wednesday that closed everything here in Connecticut for two days. My car battery died on Saturday, a victim of low single digit temperatures inside my garage. We've watched so much Nick Jr. it's now Nick the XIV. 

Yesterday, I was poking around CNN and came across an interesting article that caught my eye because it jogged my memories of Dan and his (and Mark Blaxill's) tireless writing about mercury,  medicine and the man made epidemic so many of us live every day - snow day or not.. Titled, Radium Girls: The dark times of luminous watches. 

A century ago, glow-in-the-dark watches were an irresistible novelty. The dials, covered in a special luminous paint, shone all the time and didn't require charging in sunlight. It looked like magic.

One of the first factories to produce these watches opened in New Jersey in 1916. It hired about 70 women, the first of thousands to be employed in many such factories in the United States. It was a well-paid, glamorous job.

For the delicate task of applying the paint to the tiny dials, the women were instructed to point the brushes with their lips. But the paint made the watches glow because it contained radium, a radioactive element discovered less than 20 years earlier, its properties not yet fully understood. The women were ingesting it with nearly every brushstroke.
They became known as the "Radium Girls."

Radium became part of a health fad, according to the article after its discovery by Madame Marie Curie and its use in cancer treatments. It was a proper craze. Radium became an additive in a number of everyday products, from toothpaste to cosmetics and even food and drinks. 

Despite knowing the dangers of this radioactive substance, the worker were lied to and put in harm's way in order to create these popular time pieces. But the girls didn't embrace this technique blindly. "The first thing they asked was (whether) the paint was harmful, but the managers said it was safe, which was the obvious answer for a manager of a company whose very existence depended on radium paint."

Sounds a lot like the mercury and the Age of Autism, doesn't it?  Thimerosal is safe. Mercury is safe. Aluminum is safe. GMO foods are safe. Glyphosates are safe. Trust your corporate American Daddies - everything is safe. Especially profits.

You're living in your own Private Idaho
Where do I go from here to a better state than this
Well, don't be blind to the big surprise
Swimming round and round like the deadly hand
Of a radium clock, at the bottom of the pool
The B-52s

Kim Rossi is Managing Editor for Age of Autism.


Special Needs Advocacy Ideas to Kickstart the New Year

Map to hope
By Cathy Jameson

Parents of special needs children play many roles.  Some roles come naturally to them while others take time to learn.  One role is being an advocate.  The more involved a parent becomes in their child’s education, in securing adequate health care, and in planning for the future, the more advocating they may tend to do.  It may take time to perfect, but being an advocate is important. 

The longer I advocate for my son, the more I learn.  The more people I get to meet, too.  Some of those people are fellow parents while others are just kind souls who want to help moms like me.  I’ve met more than a few kind souls on this journey.  They help inspire me to continue to work hard for my child.  I shared a few advocating ideas that I learned from others 2 years ago this week.  I thought about a few more to add for 2018. 

From being an armchair advocate to being the person willing to pound the pavement, there are tons of ways to advocate for kids with special needs.  Depending on your level of comfort, this short list of suggestions can be started as early as today.  And don’t think that these ideas are just for special parents.  Siblings, grandparents, teachers, therapists, neighbors – anyone can become an advocate! 

1 Join a mailing list – Autism Action Network and National Vaccine Information Center make it easy to be in the know.  Cruise their websites to learn what their missions are and to see how you can help. 

Ready to take it a step further?  Once you catch up on the latest news, consider contacting your representatives about issues that will affect special needs parents, like parental rights.  If an issue is near and dear to you, think about getting some facetime with your Rep.  Not comfortable speaking up yet?  Attend a legislative session, a town hall meeting, or a public forum.  Even if you don’t speak up, because speaking up can be nerve wracking, be present.  There is strength in numbers. 

2 Host a movie night – I am a movie documentary junkie.  I love to watch them because I love to learn!  I also love to share what I have discovered with others.  If you love to learn also, consider hosting a movie night with friends.  Invite the ones who have shown interest in what you’ve shared about your child, their autism, their vaccine injury, or about dietary changes or protocols you’ve used.  Think about inviting your skeptical friends, too.  Maybe hearing the information from a different source will open their mind and lead to new conversations.  Need some movie suggestions?  Here are just a few:  Trace Amounts, Greater Good, BoughtVaxxedForks Over Knives,  and Fed Up.

Ready to take it a step further?  Host a movie night at a local public library – reserve or rent one of their conference rooms.  Reach out to producers of the film and ask if you can do a short A and A via Skype before/after the event.  If you have the means, donate a copy of the movie to the library, the nearest university library, the special needs department in your district, or to the neighbor who needs a reminder that your child isn’t intentionally being difficult like they believe he or she is. 

Continue reading "Special Needs Advocacy Ideas to Kickstart the New Year" »


NJ Paper Asks If Autism Is Related to Family Shooting in New Jersey

Grace of godNOTE: Thanks to AofA reader, commenter and contributor Jonathan Rose for his alert to the updates on this macabre story. Scott Kologi is accused of shooting four family members on New Year's Eve with a semi-automatic rifle.  He has autism.  Most of us know that our kids are not aggressively violent - meaning they do not plot violence or retaliation or revenge on others. Most are rule followers and the rule of law is a comfort. However, I know that even in my pretty young women girls, they can have behaviors that are called "aggression."  It's a dark secret for many families.  Patching spackle is always at the ready for holes in walls. Scratches are laughed off as a bad kitty cat in the house. Bruises are fodder for banter between us in quiet talks.   Sudden rage is a problem in autism and Asperger's too. Uncontrolled outbursts are shocking. Share your experience if you want to, in our comments. We'll follow this case - it blows away many of the myths created around autism. And it begs the question the media loathes asking - we're psych medications a factor?   No  matter, a 16 year old with autism is looking at life in prison or a psychiatric ward.  His family members are in deep mourning. It's a horror all around. Surely we can find it in our hearts to at least think about his future - since it may be the same for many of us.....  Also, thanks to John Robison for his contribution to the story below in app.com. Kim

Click here for several in depth stories about the Kologi family.

Nearly a week after a Long Branch teen said to have autism allegedly shot and killed his mother, father, sister and a family friend, a host of critical questions remain unanswered.

Among them: What happened inside the family’s modest brick home on Wall Street leading up to the shootings, which took place minutes before the stroke of midnight ushered in the new year?

And what about the alleged murder weapon, described as a semiautomatic AK-style rifle? Whose rifle was it, and how did the boy accused of the shooting, 16-year-old Scott Kologi, get a hold of it?

The teen is facing four counts of murder and a weapons charge in the deaths of his parents, 42-year-old Steven and 44-year-old Linda Kologi; his 18-year-old sister, Brittany Kologi; and a family friend, 70-year-old Mary Schulz.

More: Long Branch shooting: Victim's death stuns Jersey Shore biz community

Few answers have been forthcoming after a judge barred the press from covering the juvenile court hearing and another judge issued a gag order to prevent lawyers from talking about the case. But one answer may never be known, even to Scott Kologi himself and his surviving relatives: What role, if any, did autism play?

It’s a complex, emotionally charged question, one that has surfaced in the aftermath of other mass shootings by individuals who had exhibited anti-social, autistic-like behavior.

That was the case with Adam Lanza, who killed 20 children and six adults in the 2012 shooting rampage at Sandy Hook Elementary School in Newtown, Connecticut. Lanza, who shot and killed his mother prior to going to the school, and later committed suicide, had been diagnosed with Asperger syndrome, which is on the autism spectrum.

Continue reading "NJ Paper Asks If Autism Is Related to Family Shooting in New Jersey" »


The Martyrdom of St Brian

image from www.whale.toRumors abound (at 35 mins) that Brian Deer has an agent trying to sell the film rights of a book in Hollywood in which he portrays himself as the victim of the Wakefield affair. Just possibly he is: used by the British establishment to do their dirty work, protected as he was allowed to riffle through the confidential medical and legal documents of children which he did not have the remotest competence to understand or interpret. The end of this unsavoury episode should have come in March 2012 when a High Court judge completely exonerated the senior author and clinician of the Wakefield Lancet paper, Prof John Walker-Smith, having failed to find any evidence for the allegations which Deer had secretly laid before the United Kingdom General Medical Council (GMC) eight years before. Deer had deliberately or inadvertently manufactured the claim that the paper was based on the research protocol for a study commissioned by the United Kingdom Legal Aid Board. Deer alleged:

Application was made to the ethical practices committee of the Royal Free Hospital by Mr Wakefield, Professor Walker-Smith and Dr Murch, and was approved by the committee on November 13 1996. The reference is 172-96. The research is described as “A new paediatric syndrome, enteritis and disintegrative disorder following measles/rubella vaccination”…

But Mitting ruled (para 20):

Its conclusion that Professor Walker-Smith was guilty of serious professional misconduct in relation to the Lancet children was in part founded upon its conclusion that the investigations into them were carried out pursuant to Project 172-96. The only explanation given for that conclusion is that it was reached "in the light of all the available evidence". On any view, that was an inadequate explanation of the finding. As it may also have been reached upon the basis of two fundamental errors – that Professor Walker-Smith's intention was irrelevant and that it was not necessary to determine whether he had lied to the Ethics Committee, it is a determination which cannot stand unless it is justified by the detailed findings made in relation to the eleven relevant Lancet children.

Judge Mitting's decision was unopposed by the GMC. After the longest and most expensive hearing in history the entire central premise was found to be false. This should also have squashed the further allegations alleging fraud against Wakefield and colleagues made by Deer and the British Medical Journal. The paper was simply an early report of cases seen and treated on the basis of clinical need as stated. There was no evidence to support irregularities. None of this should ever have happened.

A detailed account of the issues by Vera Sharav can be found at AHRP


This SEED Grows Precious Little for Autism and is a Budget Boondoggle

Iacc
Note:  Thank you to Katie Wright for slogging through IACC's meetings. How she does it we'll never know!  The Next IACC meeting is January 17th.

By Katie Wright

The 11/17 Inter-Agency Autism Committee meeting began with the CDC’s presentation on SEED, their autism “research” program. That’s right, laughs front loaded at this show. Over the past 14 yrs SEED has spent approx. $10 million and has published about 5 autism studies. The sad, sad (and I mean that in terms of value to the ASD community) research they presented yesterday was in exercise in irrelevance, govt. waste and amateurism. Throughout the bizarre presentation and even after some tough questioning, SEED Dir Dr. Stuart Shapira appeared inexplicably pleased with himself. Impossible to fathom why that was.

OK let’s start with SEED researcher Dr. Ann Reynolds. The fact that Reynolds’ presentation was on ASD/ GI science made me hopeful. I thought “Great! Finally the CDC is focusing on helping this underserved sub population.” Oh, no! I could not have been more wrong. Reynolds presented the umpteenth study merely showing that GI disease IS indeed a problem for ASD people.

Newsflash, right? Sydney Feingold did this better in his 2002 study with 1/100th the budget. The Reynolds study is lazy and unfocused. Dr. Reynolds herself seemed strangely unfamiliar with the material she was presenting, as if it were her first time seeing it. I’m not kidding. The SEED team is so inept and apathetic they gave up on collecting the research participants’ medical records “because it was too difficult.” The medical records of ASD/ GI kids is the biggest key to unraveling this issue. These children have a significant pattern of chronic infections, illness and adverse vaccine reactions prior to the onset of the ASD/ GI disease. SEED has access to ALL this precious data but choose not to work hard and to give up. So pathetic and inexcusable. Reynolds and the whole SEED team presented their information as if they were describing a sunny day in California. Reynolds had zero affect and expressed zero concern for the autistic kids living with terrible and chronic GI pain. She explained that the “treatment” for ASD/ GI disease was laxatives. What is this 1990? Even CHOP doctors state that children's’ laxatives contain a dangerous amount of arsenic and should be used sparingly, NEVER as ongoing treatment.

Why is such amateur hour leadership tolerated regarding critical medical treatment for children with developmental difficulties? How is it even possible that these doctors know so little about ASD / GI issues and offer virtually no real treatment to these suffering, disabled, young people? Untreated GI issues can lead to a refusal to eat, self injurious behavior, inability to attend to therapy, sleeplessness, constant irritability, etc. Inexplicably, Dr. Reynolds seemed totally oblivious to the seriousness of this condition. Just for starters why didn’t the SEED GI study test for IgE and IgG antibodies regarding food allergies? Why not place kids on Specific Carb Diet for 2 months and see if symptoms abate? The diet is so healthy! Fermented foods and healthy fats are much easier to digest than gluten or casein. Instead of arsenic containing laxatives try “smooth move” tea, prunes, lots of water- anything. Extra Vit D exposure and exercise are also healthy and safe ways to deal with chronic constipation. Sometimes anti inflammatories are necessary and any good pediatric GI should know this.

Continue reading "This SEED Grows Precious Little for Autism and is a Budget Boondoggle" »


Autism and the Scott Kologi New Jersey Slayings Case

Police-Crime-SceneNote: Autism not a defense in Long Branch family murder case, expert says

We're going to watch this case as it unfolds.  Scott Kologi is charged with murdering 4 family members on New Year's Eve with an assault style rifle. Media reports quote family and others as saying Kologi has autism.  The report below is troubling on  many levels. It seems callous in that it discounts his autism as a factor. We know that autism can be a severe disability even if a person seems "high functioning."   Autism is a spectrum disorder. And despite the push to normalize it, make it look like a gift or shiny new blades on a Swiss Army Knife for life, autism is a serious diagnosis that deserves respect. As do those with the diagnosis. Scott Kologi could be one of our own - if he faces adult prosecution, he's looking at either a long prison sentence or, if found mentally ill, psychiatric imprisonment. We are not condoning the crime by any means, but we hope the autism community - yours, ours, theirs, including the Neurodiversity community - will keep an eye on this boy's case. Autism does not mean violence. Our kids should not be cast as criminals or criminally insane.  With his parents dead, who will advocate for Scott? One article said his Mom took it upon herself to reach him to read when fellow students made fun of him. How's that for a warrior Mom? School may have just passed him through the grades. He did not attend his public high school. Not sure how much we will learn, since he is a minor. Stay tuned, and feel free to share any info you might have to add, especially if you're local.  Thanks.

###

Kologi has been described as a special-needs student, and being on the autism spectrum, according to media interviews with neighbors, family friends and his grandparents. Bianchi said that even if the boy does fall on the autism spectrum that does not mean he will escape a murder conviction.

“We don’t know what this term ‘autism’ means,” he said. “Everybody’s throwing that out there as if he’s autisitic, therefore it’s a defense. That’s not accurate. Whatever his issues are, they have to be to a point where he does not appreciate the difference between right or wrong.”

###

Autism not a defense in Long Branch family murder case, expert says
By Adam Hochron January 2, 2018 10:32 PM
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LONG BRANCH — One of the few things known about the 16-year-old boy accused of gunning down his parents, sister and family friend on New Year’s Eve is that he has a developmental disability. But attorneys representing the accused murderer will not be able to rely on that factor alone to defend him in court.

Scott Kologi is charged with killing his father, Steven Kologi, 44; his mother, Linda, 43; his 18-year-old sister, Brittany; and family friend Mary Schultz, 70.

Monmouth County Prosecutor Christopher Gramiccioni said he intends to try the boy as an adult, which will happen only when a judge agrees to waive the case up to criminal court.

Former Morris County Prosecutor Robert Bianchi said moving the case to an adult courtroom as opposed to keeping it in the juvenile justice system would greatly increase the punishment the boy could face if convicted. An adult convicted of murder would face a minimum sentence of 30 years in prison, while a conviction in juvenile court would result in just a couple of years behind bars.

“Essentially, the difference is that where an adult court is about punishment and deterrence, the juvenile justice system is about rehabilitation of the offender,” Bianchi said. “The idea there is they’re going to try and rehabilitate him as a juvenile offender, as opposed to the adult system … where it’s merely punishment.”  Read more here.

 

 

Read More: Autism not a defense in Long Branch murder case, expert says | http://nj1015.com/autism-not-a-defense-in-long-branch-family-murder-case-expert-says/?trackback=tsmclip




Presto Change-OH! Vaccine Injury Isn't Magic Mr. Gates.

Rainbow vaccineNote: Terrific article from World Mercury Project on Bill Gates and his rainbows, sunshine and unicorns vision of vaccines. "Magic?" Can you imagine anyone other than "Dr. Bombay" using the word "magic" for a medical procedure of any sort - and being taken seriously? We can't. The hubris of Gates' opining is frustrating and dangerous.   The "magic" many of us have seen is black magic, dark and dangerouns. Thank you, WMP.

###

Bill Gates is fond of using his bully pulpit to talk about “miracles” and “magic.” Gates has featured one or both words in nearly all of his annual wrap-up letters for the Bill & Melinda Gates Foundation (2009, 2010, 2011, 2012, 2014, 2016 and 2017), most often in reference to the Gates Foundation’s outsized financial and ideological support for global vaccine programs. As Gates says, “In the same way that during my Microsoft career I talked about the magic of software, I now spend my time talking about the magic of vaccines.”

Gates’s words give us an immediate clue that he is engaging in his own brand of magical thinking—which social scientists define as “illogical causal reasoning.” How else to explain his simplistic endorsement of vaccines as a miraculous intervention with unmitigated benefits and no down side? The Gates Foundation’s global spreadsheet appears to have no room to tally the massive flood of vaccine injuries afflicting children worldwide, despite abundant evidence that this damage is standing the vaccine risk-benefit calculus on its head and turning childhood into an extended round of Russian roulette.

Let’s report history accurately

In a widely cited 2014 blog post on the “miracle of vaccines,” Gates expressed enthusiasm about the “inspiring” data on vaccines and the “fantastic” and “phenomenal” progress being made to expand vaccine coverage. There is one major problem with Gates’ professed reliance on “data,” which is that the philanthropist ignores fundamental historical facts governing infectious disease and vaccine timelines.  Read more here.


Roadmap to Hell

image from en.wikipedia.orgBy John Stone

These are my comments as UK and European Editor of Age of Autism on the European Commission document 'Roadmap: Strengthened cooperation against vaccine preventable diseases'.  This is one of 368 comments, which are overwhelmingly negative to the project:

 This project is misconceived in several dimensions. While it latches on to the issue of measles and flu mortality the number of diseases which could be defined as “vaccine preventable” is open ended, as is the number of vaccine products that the vaccine industry hopes to be licensed, and recommended for use or mandated – at the present time hundreds of different products are in development [1] purely on the principle that there will be a captive, or quasi-captive market available when they are ready to be marketed. The drive for more compliance and more products is not coming from citizens but from the industry and bureaucrats. At a simplistic level anyone could agree that preventing disease is a good thing (though some may have long term health benefits) but it could not be true at any cost to the population. There is no scientific or historical model for subjecting a population to an ever-expanding schedule of vaccine products. This is simply becoming the biggest human experiment in history.

As the schedule expands it would be rational to consider that perhaps some diseases are not so dangerous, or not so common, and that some of the products may not be so effective or safe – and by now there are already a great many. It may also be by now that the population is not so well from the proliferation of chronic diseases, mental ill-health and neuro developmental disorders. The possible relationship between these manifestations and the expanding schedule have been flippantly dismissed and attempts to research it have been persecuted. We do not presently have institutions which are as capable of protecting the public interest as that of the industry. But the pioneering recent paper by Mawson et al which attempted to address the problem reported [2]:

A convenience sample of 666 children was obtained, of which 261 (39%) were unvaccinated. The vaccinated were less likely than the unvaccinated to have been diagnosed with chickenpox and pertussis, but more likely to have been diagnosed with pneumonia, otitis media, allergies and NDD. After adjustment, vaccination, male gender, and preterm birth remained significantly associated with NDD. However, in a final adjusted model with interaction, vaccination but not preterm birth remained associated with NDD, while the interaction of preterm birth and vaccination was associated with a 6.6-fold increased odds of NDD (95% CI: 2.8, 15.5). In conclusion, vaccinated homeschool children were found to have a higher rate of allergies and NDD than unvaccinated homeschool children. While vaccination remained significantly associated with NDD after controlling for other factors, preterm birth coupled with vaccination was associated with an apparent synergistic increase in the odds of NDD. Further research involving larger, independent samples and stronger research designs is needed to verify and understand these unexpected findings in order to optimize the impact of vaccines on children’s health.

Leslie et al reported [3]:

Results...Subjects with newly diagnosed AN (anorexia nervosa) were more likely than controls to have had any vaccination in the previous 3 months [hazard ratio (HR) 1.80, 95% confidence interval 1.21–2.68]. Influenza vaccinations during the prior 3, 6, and 12 months were also associated with incident diagnoses of AN, OCD (obsessive compulsive disorder), and an anxiety disorder. Several other associations were also significant with HRs greater than 1.40 (hepatitis A with OCD and AN; hepatitis B with AN; and meningitis with AN and chronic tic disorder).

Continue reading "Roadmap to Hell" »


Happy New Year! Hopeful Autism Research and Treatments For 2018

Hope dandelionBy Teresa Conrick

2017 had good and bad attached to it.  For many of us, the death of our dear colleague and friend, Dan Olmsted, has saddened many a day since.....  Dan did much innovative research and writing for years to expose the issues that bring us all here daily. Age of Autism has become a refuge for years now, to so many looking for truth and answers. As we enter 2018, I would like to keep with that tradition by sharing my list of what I think is important and innovative in the science area of autism.  It's imperative that families know that there is good research happening but unfortunately, there's a hell of a lot of bad research about autism, and often we hear about that too much.... especially the mulri-million dollars wasted on genes (have you seen the constant SPARK, pop-up infomercials on Facebook,  a nowhere odyssey of genetic, musical chairs?)  We need real research to help so many who suffer with the many symptoms of autism - painful GI disease; seizures;  inability to speak or communicate in a meaningful manner or, at all; extreme sensory disturbance; executive functioning disability; debilitating obsessions, compulsions and tics; acute anxiety; heartbreaking self-injurious behaviors; and the daily struggles with social cues. Much of this originates in the gut.

                                                                                                      Studies on Causation

♦  Atopic diseases and inflammation of the brain in the pathogenesis of autism spectrum disorders 

♦  Temporal Association of Certain Neuropsychiatric Disorders Following Vaccination of Children and Adolescents: A Pilot Case–Control Study 

♦  Characterization of the Pediatric Acute-Onset Neuropsychiatric Syndrome Phenotype  

♦  The role of oxidative stress, inflammation and acetaminophen exposure from birth to early childhood in the induction of autism  

♦  Systematic Assessment of Research on Autism Spectrum Disorder (ASD) and Mercury Reveals Conflicts of Interest and the Need for Transparency in Autism Research

Continue reading "Happy New Year! Hopeful Autism Research and Treatments For 2018" »


New Jersey 16 Year Old Held in Murder of Family Members

WeepNote: Below is a tragic American story of gun violence at the hands of a young male. Of interest to us is that the teen has been said to have autism by a neighbor, and one article in the Press Democrat has the following quote:

Jalen Walls, 18, a neighbor who went to school with Brittany Kologi, told NJ.com that he frequently went to the Kologi’s house. He said their 16-year-old son required special assistance and was cared for by his mother. The teen did not attend the same public schools as his siblings, he said. “But he was fully functional and comprehended what we were saying,” Walls said.

Many of us are intimately aware of the family violence that can take place when a loved one with autism rages. But shootings are in their own category of planning and a huge difference from punching walls or even people.  I think the majority of us would argue that our kids with autism are kind hearted and not prone to vindictive rages.  If medications were in use, could they have caused violent behavior? If medications had been stopped suddenly, could that have been a factor?  Pharma must be held accountable for the "side effects" that wreak havoc on our society.  Medtal illness is a scourge.   This is as sad story no matter the circumstances. We're sorry.

LONG BRANCH, N.J. — A 16-year-old New Jersey boy armed with a semi-automatic rifle shot and killed his parents, sister and a family friend inside the home where they lived, authorities said Monday.

Monmouth County Prosecutor Chris Gramiccioni said the teen will be charged with four counts of murder and a weapons offense stemming from the shooting that occurred late Sunday night, less than 20 minutes before midnight on New Year’s Eve in the shore town of Long Branch.

A possible motive for the shooting has not been disclosed. The rifle used in the shooting was legally registered to a resident of the house, Gramiccioni said.

The teen’s name has not been disclosed, and it wasn’t known Monday if he’s retained an attorney.

The victims were identified as the boy’s parents, Steven Kologi, 44, and Linda Kologi, 42; his 18-year-old sister, Brittany, and 70-year-old Mary Schultz, who lived with the family.

Police responded to a 911 call of shots fired at the home just after 11:30 p.m. Sunday, Gramiccioni said. He described the shooting as an isolated domestic incident and said the teen was taken into custody without issue.

The teen’s grandfather and brother were not targeted and left the home unharmed.

“It’s a terribly tragic incident,” Gramiccioni said.  Read more here.

Charges were expected to be filed later Monday, he said.

The teen is expected to make an initial court appearance Tuesday, and prosecutors were considering whether they would seek to move the case to adult court.


Live Through This

Champion fall out boyBy Cathy Jameson

“…if I can live through this…I can do anything…”

I heard a song a few months ago while driving around town running some errands.  It was still playing on the radio when I got to my destination.  Rocking out to it while sitting in my car in the Costco parking lot, I waited until the song ended before resuming my busy day.  Once it was over, I turned off the car and grabbed my shopping list.  Repeated the refrain as I walked into the store, I told myself, Don’t forget to look up the lyrics when you get home.  It would be a few hours before I’d make my way back home though.  When I finally got there, I completely forgot to look it up.  Last week in the midst of some other errands that had me running all over town, the song came on again.  I had just turned on the car.  Staying in the parking spot so I could listen to the lyrics, I rocked out to the song once again.  

…I’m calling you from the future

To let you know we made a mistake

And there’s a fog from the past

That’s giving me, giving me such a headache…


Golly, is that my life or what?  It isn’t every day, mind you, but I do feel like mistakes have been made.  Some people can look past mistakes, theirs and ones made by others.  They can let the past go, and I applaud them, but I will still sometimes struggle with the “I would have if I could have” thoughts that pop into my head.  They pop into my head when Ronan has another seizures, when he lashes out at his loving therapists, and when he pulls his sisters’ hair.  Those frustrating moments bring out the worst in Ronan.  They can bring out the worst in me and make me want to throw every positive thought I have out the window.    

…I got nothing but dreams inside

I got nothing but dreams…

 

Ahh, yes, those dreams.  Those dreams!  I believe in them, and I hope in them fully.  Dreams help me put one foot in front of the other.  They help me get out of whatever funk I have gotten myself into, too.  Falling into a funk - that happens, and it’s hard to get out of sometimes.  Most of the time the funk happens when I get a peek back at the past.  People have told me to stop thinking about the past and to move on.  They are usually people with much higher functioning children or people who have no children at all.  I don’t begrudge them for not understanding, but I also don’t give them too much of my time.  It is sometimes pointless to talk to them because they don’t have the same deep, emotional scars I have.  But I’d love to ask them how does one move on fully when the past lingers as much as it does in the present? 

Ronan never made it through certain stages. 

He never hit some major milestones. 

He hasn’t grown up like other typically developing kids have. 

His past included enjoying baby books, watching baby movies, and wearing diapers.  Presently, he still likes his old baby books, still likes baby movies, and still wears diapers.  The past never left.  It parked itself in our home, and on some days, it rules our house morning, noon, and night!  Believe me I’ve tried to not think about the past, but it’s right there in my face all day long.  I handle it by dreaming about the future and living as hopefully ever after as I can.  That’s because …I can do anything…

People ask me all of the time, Cat, how do you do it all?  Some days, I seriously don’t know, so I sheepishly reply, I just do what I have to do.  Ronan needs me.  He needs endless support.  I do what I can when I can.  That’s because I believe that Ronan can do anything.  If I think otherwise, I’ve set him up for failure.  This kid hasn’t failed anything!  Other people may have failed him, but he has soared.    

…If I can live through this…

Continue reading "Live Through This" »


FirstFreedoms.org Files Human Rights Complaint Against Italy for Mandatory Vaccination Law

Italian GestureNOTE: From Kevin Barry of FirstFreedoms.org:

On Christmas Day, we filed a human rights complaint against Italy.  The mandatory vaccination law Italy passed violates international human rights and bioethics standards for Italy's almost 60 million citizens.

We will be filing a human rights complaint against France in the coming days because its recent mandatory vaccination rules violate the same standards for France's almost 65 million citizens.

We need your financial help to see this through!  The goal is to reverse the policies in Italy and France and to educate policy makers worldwide that vaccine mandates violate human rights and bioethics.  Parents are having their human rights taken away by the millions at one time.  We have to draw the line in 2018!!

Please give what you can to help this critically important project either via PayPal or GoFundMe.  (Thank you to Stephanie Stock for starting the Go Fund Me!)

Donations are tax deductible. 

Happy New Year to you and your families!

Kevin Barry


Dr. Jacob Puliyel on The "Dubious" HPV Vaccine

HPV adNote: Thank you to Dr. Puliyel for sharing this editorial he wrote in the Tribune India.  At the end of his editorial posted here is an article that also ran on 12/25 in the Tribune India titled Prevention is Better Than Cure that extols the use of HPV vaccines and claims ZERO adverse effects. ZERO.  You are able to comment on both articles at their links. ZERO adverse effects. I noted that Dr. Puliyel's article has ten times the social media shares as the second article. Interesting.

By Jacob Puliyel

The writer, a doctor, is the Head of Pediatrics, St Stephen's Hospital, Delhi, and a member of the National Technical Advisory Group on Immunisation.  The views expressed are personal. 

Dubious Vaccine for Cervical Cancer

Before a new vaccine is introduced it is first studied in a randomised controlled trial where some are given the drug and others are given an inert substance to check the effects and adverse effects among those given the new drug. Last week, Slate published a cover story on the investigation of the randomised trials of human papillomavirus (HPV ) vaccines before approval.  The science editor conducted an eight-month long investigation, interviewed study participants and studied  2,300 pages of documents obtained through freedom-of-information requests from hospitals and health authorities.

Flawed Trial

Slate found that during the year-long study data on potential side effects were collected for only two weeks.  The rest of the time individual trial investigators used their personal judgment to decide whether or not to report medical problems as adverse events. An oxymoronic instruction to investigators was to list new problems as ‘new medical history’. There is no evidence the confidential study protocol was submitted to regulators for approval. The worksheet investigators used allotted just one line per entry for new medical history, with no measurement of symptom severity, duration, outcome, or overall seriousness. Trial participants complained to Slate that repeated complaints of debilitating symptoms were not even registered in the study as potential side effects. The European Medicines Agency (EMA) is the regulator in Europe.  In an internal 2014 EMA report about Gardasil 9 – a leading HPV vaccination - obtained through a freedom-of-information request, senior experts called the company’s approach “unconventional and suboptimal” and said it left some “uncertainty” about the safety results. In the EMA’s public assessment Gardasil 9, all mention of the safety concerns had been scrubbed.

Chronic Fatigue Syndrome

Not all recipients of the vaccine developed serious adverse effects. But there are numerous reports of chronic fatigue syndrome (CFS ) otherwise known as myalgic encephalomyelitis which is characterized by long-term fatigue that limits a person’s ability to carry out ordinary daily activities. Dr Jose Montoya, a professor of medicine at Stanford University explains that the condition usually starts with an insult to the immune system—a severe infection, a car crash, a pregnancy. The first symptoms are flu-like, but months go by and the patient realizes she isn’t getting better.’ In a few genetically predisposed individuals, Montoya told the Slate editor, it is “biologically plausible” that the vaccine, which mimics a natural infection, could also trigger an immune response powerful enough to lead to CFS. To find out if that is the case, trial investigators would need to carefully track participants’ symptoms “for at least one year.” CFS is not the only serious adverse effect reported. The American College of Pediatrics has suggested one of the HPV vaccines could possibly be associated with the very rare but serious condition of premature ovarian failure (POF), also known as premature menopause.  In Japan, use of the vaccine in adolescents has been associated with such serious adverse events that it has been withdrawn from the immunisation programme.

Usefulness of Vaccine

HPV spreads only through sexual contact and therefore is not communicable in a casual manner. There are about 100 strains of HPV, and the vaccine only protects against 2, 4, or 9 of them, depending on the brand and 95% of HPV infections heal by themselves – potentially granting the individual lifetime immunity against the particular strain. Perhaps to improve uptake of the vaccine the manufacturers promote it as an anticancer vaccine rather than a vaccine against sexually transmitted disease.  But while there is evidence that the vaccine reduces infection with the vaccine strains of the virus, non-vaccine strains have been known to replace the vaccine strain and these could produce cancer. There is currently no scientific study that shows the vaccine reduces cervical cancer in the women who are vaccinated.  The efficacy of the vaccine against cancer is unknown

Cost-effectiveness READ MORE HERE.

Also published, 12/25 in the Tribune India was the following:

Prevention is Better Than Cure.


CN Purandare, Alka Kriplani & Neerja Bhatla IN India, cervical cancer is the second most common cancer in women, accounting for nearly one-fourth of the global burden of cervical cancer, with an estimated 122,800 new cases and 67,500 deaths annually, which is more than the number of deaths due to maternal mortality. Since these women are usually in their 40s and 50s, it is estimated that the years of life lost are greater in cervical cancer. Globally, cervical cancer accounts for 528,000 cases including 445,000 cases in low and middle income countries (LMICs). 

Epidemiology

The age-standardised incidence rate of cervical cancer varies between 5.6 and 24.3 per 100,000 women in different regions of India. Although a gradually declining trend in the cervical cancer incidence has been observed in different regions of India over the last two decades, the rates still remain significantly higher than in other Asian countries. In fact, the absolute numbers of both cervical cancer cases and deaths are on the increase due to population growth. In the West, repeated testing by Pap smear and consequent treatment of precancerous lesions led to a substantial decline in the numbers of cervical cancer cases. In India, with very limited resources to introduce and sustain effective population-based cervical cancer screening programs, there was not much progress in preventing this very preventable cancer.  The discovery by Nobel laureate Harald zur Hausen that persistent infection with one of the oncogenic, high-risk types of human papillomaviruses (HPV) is the 'necessary' cause of cervical cancer; enabled the development of primary prevention using HPV vaccination. Presently available vaccines target the two types that are responsible for 70 per cent of cervical cancers worldwide. HPV 16 and HPV 18 and can prevent over 90 per cent of high-grade precancerous lesions caused by these types. In India, there is a greater proportion of these types, making it likely that the impact of vaccination will be better than has been observed already in research studies and in countries that have implemented the vaccine program.

Efficacy of doses

Fewer than three doses of HPV vaccine would substantially reduce costs, improve compliance, ease logistics and facilitate scale up in national immunization programs.  Data to support this has emerged from trials. WHO, after reviewing the available evidence on less than 3-doses, has recommended a two-dose schedule for girls (at an interval of 6 months, which may be extended to 12 months to facilitate vaccination) if vaccination is initiated prior to 15 years of age and a three-dose schedule (at 0, 1-2, and 6 months) if vaccination is initiated after the 15th birthday and for immunocompromised individuals, including those infected with HIV.

Countries implementing Immunisation

More than 80 countries have introduced HPV vaccine in the national immunisation programs (NIPs), of which 33 are LMICs; in addition, 25 LMICs have introduced HPV vaccination in pilot demonstration programs as a prelude to national scaling up in NIPs.  In most programs a school-based approach is predominantly used to deliver the vaccine to the targeted adolescents with additional efforts using field clinics, and primary health centres to cover girls who missed vaccination and do not attend schools. Gavi The Vaccine Alliance has been able to markedly reduce the procurement price of both vaccines to Rs $5.   While Australia, Denmark, USA and Canada were the first high-income countries to introduce HPV vaccination in NIPs in 2007, Panama (2008) in Latin America, Bhutan (2009) in Asia and Rwanda (2010) in Africa were the first LMICs that introduced HPV vaccination. Early reports of protection offered by the vaccine at the population level against vaccine targeted HPV infections, genital warts and cervical premalignant lesions have already started coming from countries that introduced the vaccine between 2007 and 2010.

HPV vaccine safety

Extensive data on the safety of HPV vaccines are now available from clinical trials and the population programs. Globally more than 270 million doses have been administered with no serious adverse events linked to the HPV vaccine and with an excellent safety profile. A meta-analysis of vaccine trials concluded that the frequency of serious adverse events (OR 0.99; 95%CI 0.87-1.14) and death (OR 0.91, 95%CI 0.39-2.14) were similar in the vaccinated and control groups. The majority of deaths reported were accidental in nature, and none was attributable to the vaccines. Various rare syndromes have also been studied and none found to be related to the vaccine. A recently published study from India reported no serious adverse event attributable to the vaccine after administering 34,856 doses of the quadrivalent vaccine to 10-18 year old girls and following them over four years. Read more and comment here.


Dan Olmsted's: Six Bad Ideas that Triggered the Autism Epidemic

6Note: Our dear Dan wrote this post in 2015 at the end of the year. I miss him every single day. I know you do too. We've weathered a rotten year, friends. And I couldn't have done this without your support, financial, emotional, content, in every way. Thank you. KIM

By Dan Olmsted

We probably all know the saying that Ideas Matter. Lately I’ve been mulling a handful of ideas – very bad ideas, I’d say – that have come together to trigger, expand, and perpetuate the autism epidemic and a host of allied disorders that constitute The Age of Autism.

Today I’m going to lay them out in brief, and in coming days I’ll say more about each one, and end with the counter-ideas that could really bring us a happy new year.

Please add your own!

Bad Idea Number One. Vaccines are the Eric Clapton of Medicine; they are God. Vaccines are the number one medical accomplishment of all time, and every day in every way they make our world safer and safer. Bow down!

Bad Idea Number Two. The evidence for Number One is clear. “Study after study” has shown that vaccines work wonderfully and that the so-called “risks” are effectively zero – a one-in-a-million chance of anything serious happening. (“One in a million” is pharma speak for zip, zilch, nada, roll up your sleeve.)

Bad Idea Number Three. Disagreeing with Numbers One and Two is Unacceptable Speech. Claims that vaccines are more dangerous than advertised are bogus and should be suppressed. You need to be a conspiracy theorist, a purveyor of junk science, a pathetically gullible parent looking for someone to blame for your damaged kid, or out-and-out anti-vaccine to harbor such ideas.  

Bad Idea Number Four. Conflicts Don’t Count. Drugmakers, doctors, legislators, bureaucrats, TV programs buoyed by pharma money are immune to the usual concerns that conflicts of interest -- profits, incentives, campaign contributions, ad dollars, liability worries -- require extra vigilance by the press and public. The drug companies may be caught red-handed in corrupt dealing, Congress bought off, the media lazy and desperate for drug dollars, but when it comes to vaccines (see Number One), they have only our health at heart!

Bad Idea Number Five. Because the first four are true, we must trust The Experts who are working hard every day to help us stay happy and healthy. They are god’s messengers on earth.

Trust. The. Experts.

Continue reading "Dan Olmsted's: Six Bad Ideas that Triggered the Autism Epidemic" »


"Constant Race To Keep Ahead of Him," Tot with Autism Drowns

Paul Kevin Rozier

NOTE: Imagine the agony of losing a child, on Christmas no less. Paul Rozier drowned in a nearby pool. A story as oft repeated as A Visit from St. Nicholas is in December. In fact, my "On this  Day" that dumb Facebook reminder of ghosts of every day past, showed a similar drowning in 2014. Where is the outcry from our Public Health officials, our Pediatricians, Nurses, School Teachers and media on the scourge of autism drownings? Where is the demand for a cure so that these kids have a chance at something other than a watery grave with the Sirens’  call? Had this boy died from measles, we'd be on a red alert. There is no BLUE alert for autism. It just happens. What a shame. Time to check out the post Christmas sales. Make sure you get your flu shot. The lack of genuine concern is criminal.

On this day drowning


MILILANI, OAHU -- The body of a missing 7-year-old boy on Oahu was found in a backyard pool at a vacant house Christmas morning, according to police. CBS Honolulu affiliate KGMB reports Paul Kevin Rozier had wandered about a half mile away from his home.

Investigators believe Rozier drowned, and there are no signs of foul play.

His family went out shopping on Christmas Eve, leaving Rozier home with cousins when he disappeared. They say he was autistic, and sometimes left the home.

"It was a constant race to keep ahead of him and to be able to keep him in the house," said Paul Rozier, the boy's father. "Though he was only partially verbal, he was extremely smart."

The boy's family asked for help on social media, so strangers from all over the island came to help look for him.

"His teachers, his therapists and behavioral techs and just random people who heard us calling for him on the street and asked what was happening were searching," said Rozier.  Read more here.


Part 4 Grist For the Mill For the Turning of Backs: When Family Defects from the Defective

                                                 Deliverance painting
                                                                                                       Teresa Elliot, “Deliverence”

By Adriana Gamondes

Read part 3 here

Read part 2 here

Read part 1 here

The Burning Question

The study  reporting the massively elevated rate of early death among individuals with autism came out over a year ago.  Even less reassuring is that the study was done in a country—Sweden—that has far better healthcare and disability systems than the US as well as a voluntary vaccine program and lower rate of autism.

But as cruel as the news was, it was grimly validating of all the measures many families have taken to keep affected children alive, often in the face of bitter criticism that these concerns are unfounded and the measures unnecessary. All the same, it’s something no one wants to be right about.

In the report, individuals with autism, especially “high functioning,” were found to commit suicide at much higher rates than typical peers, and children with autism are 28 times more prone to suicidal ideation.  Accidents were also a leading cause of early death. But the reigning cause of early mortality in autism is seizures, which cut lifespan by thirty years on average.

Researchers note that individuals with autism are also up to 40 times more prone to seizure disorders than the general population, which must be one of the factors that has spiked the statistical rate of epilepsy to the current 1 in 26 in the U.S., not the older figure of 1 in 100 that was reported  by study authors.  Authors further note that many individuals with autism develop seizures in their teens and twenties in a late-onset form that tends to be far deadlier than epilepsy in typical individuals for reasons that researchers don’t (or won’t) understand. 

But that’s something else parents know, isn’t it? Though it’s impossible to foresee every cause, autism parents tend to develop a radar for many of the triggers of neurological events—the toxic and allergic exposures, the depleted nutritional status, the infections and stressors— that inch children closer to the abyss of full-blown seizure disorders. This is because immediate families live with the immediate fallout. 

After the study came out, my husband and I had an epiphany. We realized what many autism parents are doing  when we issue “too much information” on health concerns, special diets, treatments, institutional abuse, wandering deaths and seizure risks is that we’re asking an important question of those in our family circles. We’re asking who among our clans would not only watch out for injured children but also who might do what it takes to keep those children out of institutions and alive for more than a few years in the case we were taken out of the picture through disability or death.  Parents may also be asking who among their families will be raising the next generations to actually give a damn about their disabled relatives once those in the older generation die or become too infirm to manage.  

Continue reading "Part 4 Grist For the Mill For the Turning of Backs: When Family Defects from the Defective" »


Family First

Family StoryBy Cathy Jameson

Knowing how much work it takes to keep Ronan happy and safe, my sister's family is more than patient with us when we visit.  They are more than generous, too.  Before we arrive, they've stocked their shelves with safe food items for Ronan to eat because they understand that sore tummies are not easy to deal with.  Knowing he's a kid who's prone to wander, they promise to help keep an extra eye on the doors with us when he’s in the house.  Fully understanding that Ronan needs some quiet space, one of the cousins takes time to clean up his room for Ronan and offers to sleep on the floor in another bedroom.  It's a lot of work to host us, but we never feel like we've overstayed a welcome when we're at my sister's house.  

Overloaded with excitement, the siblings were beside themselves with joy when we began to pack our bags to travel to family for Christmas.  I was excited, too.  I was until a diaper exploded in my sister's washer.  If you've never experienced a full diaper exploding in a washer, consider yourself lucky.  

Having completely forgotten about it by the time I got to wash a very full load of linens Ronan had peed on in the middle of the night, I was embarrassed.  The gel beads from the diaper and the pull up he wears over the diaper each night were everywhere.  In his pajamas, all over the full-size afghan throw, and in his socks that I'd washed, it would take 45 minutes to find and remove every single bead.  Trying to find the positive after dealing with that mess, I told my sister she now had the cleanest washer in her neighborhood.  We laughed because what else can you do in a situation like that?  

Continue reading "Family First" »


21 Year Old With Autism Left at Hospital for 5 Months in CT

All aloneDO THEY KNOW IT'S CHRISTMASTIME AT ALL?  Below is a story you will see over and over in 2018 and beyond.  Where the hell is our concert? From CT, where I live. My girls have programming thank God. Not every child in CT gets funding. And programs are still hit or miss.  Remember Alex Spourdalakis? Remember Skye Walker? Some adults with autism have vicious, dangerous behaviors - a sad and PAINFUL truth.  And parents are getting older, and exhausted. There are siblings to worry about and  survival triage becomes the goal.  This young man has been shuttled around a hospital for 5 months. It's a travesty.

We need more than a BAND AID.....  Kim

###

A young man with autism and an intellectual disability was abandoned by his family in July and has languished at Manchester Hospital, with no medical diagnosis, for virtually all of the past five months as the state’s disabilities agency maintained that there were legal barriers to taking him into state care.

The 21-year-old has behavior problems, and he has shuttled between a hospital room, the busy emergency room, and an area normally reserved for psychiatric patients, according to an advocacy group that has taken up his cause at the behest of a hospital staff deeply concerned that they are not equipped to care for him. On Friday, state officials said they were finally prepared to offer services to the young man.

His presence in the emergency room is indicative of a statewide quandary, as hospitals have become the dumping ground for a growing number of profoundly disabled children and young adults.

The young man was first dropped off at the hospital on July 28 and has been in the hospital since then, except for a 10-day period in which his family took him home. His parents then brought him back to the hospital on Dec. 10, said Nancy Alisberg, legal director for Disability Rights Ct in Hartford. She said it was her understanding that the young man had been aggressive toward his parents and brother.

Alisberg said that while hospitals are seeing more of these cases, this was an extreme example.

Continue reading "21 Year Old With Autism Left at Hospital for 5 Months in CT" »


NYT Reports: A Federal Ban on Making Lethal Viruses Is Lifted

The flyNote: From the "what could possibly go wrong?" files....

A Federal Ban on Making Lethal Viruses Is Lifted

Federal officials on Tuesday ended a moratorium imposed three years ago on funding research that alters germs to make them more lethal.

Such work can now proceed, said Dr. Francis S. Collins, the head of the National Institutes of Health, but only if a scientific panel decides that the benefits justify the risks.

Some scientists are eager to pursue these studies because they may show, for example, how a bird flu could mutate to more easily infect humans, or could yield clues to making a better vaccine.

Critics say these researchers risk creating a monster germ that could escape the lab and seed a pandemic.

Now, a government panel will require that researchers show that their studies in this area are scientifically sound and that they will be done in a high-security lab.

The pathogen to be modified must pose a serious health threat, and the work must produce knowledge — such as a vaccine — that would benefit humans. Finally, there must be no safer way to do the research.

“We see this as a rigorous policy,” Dr. Collins said. “We want to be sure we’re doing this right.”

In October 2014, all federal funding was halted on efforts to make three viruses more dangerous: the flu virus, and those causing Middle East respiratory syndrome (MERS) and severe acute respiratory syndrome (SARS).

But the new regulations apply to any pathogen that could potentially cause a pandemic. For example, they would apply to a request to create an Ebola virus transmissible through the air, said Dr. Collins.  Read more here.


Generation Rescue Shares Touching Story of Autism Santa Visit

Christmas hopeNOTE: It seems to me like America is in a pretty grim place of division, anger, abhorrent behavior and rancor. The holidays call for peace, happiness, joy and gratitude. Below is a perfect Hallmark card for the holidays.   Some of our kids do not speak. My Bella has very few words. She uses "Hello, Mama" for most every verbal request. Smart kid! Check out this young boy, a recipient of the Generation Rescue family grant program during his first successful visit with Santa Claus.  Please don't believe the Scrooges and Grinches who tell you autism is not treatable. That acceptance is all you need. All there is. So many of us old timers heard that over and over. There was no Google when my kids were tots. Today? You can get to Generation Rescue and other orgs, national and local to get true meaningful help for your child.  Thank you to Jenny McCarthy and Generation Rescue for their tidings of great joy - and hope.

###

After years of being uncomfortable or frightened, a warrior mom participating in the Rescue Family Grant Program was shocked that her 6-year-old son with autism was excited to see Santa.

“William has always been interested in Santa but when we would go see Santa, he just couldn’t handle it – refused to speak or look in Santa’s direction and would start to cry.

We also always had to hold him. Last year we even went to great lengths to take a Santa train ride and have a private appointment with Santa in his train coach. That didn’t even work.

This year it all changed. I know this sounds dramatic, but it felt like an early holiday miracle!

When it was time for Santa to arrive, he did so on a firetruck lit up with Christmas lights. I told Will we needed to line the street to greet him. He got so excited, but I held my breath.

Santa’s Christmas Firetruck stopped in front of us and Santa climbed down the ladder and came right over to us. Will looked Santa in the eyes and said ‘Merry Christmas’ and ‘Thank You’ when Santa handed him a candy cane. Will also chased down Olaf the snowman and gave him hugs and danced with him!

6-Year-Old With Autism is Excited to See Santa

After years of being uncomfortable or frightened, a warrior mom participating in the Rescue Family Grant Program was shocked that her 6-year-old son with autism was excited to see Santa.

“William has always been interested in Santa but when we would go see Santa, he just couldn’t handle it – refused to speak or look in Santa’s direction and would start to cry.

We also always had to hold him. Last year we even went to great lengths to take a Santa train ride and have a private appointment with Santa in his train coach. That didn’t even work.

This year it all changed. I know this sounds dramatic, but it felt like an early holiday miracle!

When it was time for Santa to arrive, he did so on a firetruck lit up with Christmas lights. I told Will we needed to line the street to greet him. He got so excited, but I held my breath.

Continue reading "Generation Rescue Shares Touching Story of Autism Santa Visit" »


Part 3 Grist for the Mill for the Turning of Backs: When Family Defects from the Defective

Deliverance painting

Teresa Elliot, “Deliverence”


By Adriana Gamondes

Read part 2 here

Read part 1 here


A Dirty Game

Some autism families have been very lucky to find tremendous emotional support and even occasional respite within their family networks. Others swear this is the case while their affected children are very young but then find the support falling away once those children reach their teens and are no longer quite so small and cute.  Some find themselves completely alone immediately following diagnosis. 

However the defection plays out, for years I’ve been hearing the same story from countless autism parents—the crisis when they find themselves mysteriously alienated from the extended family fold, usually after coming under severe criticism for some aspect of their parenting.  

The complaints and charges fueling the attacks might all be different, but the effect is the same: the stricken children at the center of the fracas are left even more isolated than they were already.  I’m beginning to think that’s the whole point.

One parent I know suddenly disappeared from Facebook, explaining later in private that she couldn’t take how her  extended family were using social media as a buffer to avoid having any contact with her disabled child. They would post birthday greetings on her Facebook wall in place of gifts, cards and, most importantly, visits. This parent’s son was too “severe” for family to deal with.

Another friend found herself cut out of a family elder’s will because, as he argued before the entire family (minus her and her affected son), she had fabricated her son’s autism to leech off the state. Never mind that her son’s diagnosis was well documented. Never mind if she barely took advantage of available public programs because, with all the defunding, the quality of certain services had become appalling and often came with scary and unwanted strings of state control. In her case, none of the remaining beneficiaries offered to share their cut or attempted to argue with the cruel elder, leaving this friend in a state of shock and, ironically, all the more in danger of being dependent on the state.

In her case, what gave bystanders the luxury of opining that her son never had autism were all the grueling effort and sacrifices she’d made along the way to get him to that level, to the point of nearly impoverishing herself. In that story, her son was too recovered for family to deal with.

There are so many other stories of parents being informed that their disabled children weren’t welcome at family celebrations or events that all the other children in the extended family and half the neighborhood attended.  I’ve spoken to too many parents who were told, often by those near and dear, that they should institutionalize their affected children who “belong with their own kind” so that they “don’t hold back the others.”

Some unreflective types might bluntly admit that they can’t stand being around disabled child or adult family members, but most seem to opt for the more socially defensible tact of spinning blame from parenting practices. In these dramas, parents find themselves blamed for being overly protective or not doing enough to rein their children in; they’re criticized for their choice of school or lack of school in the case of homeschoolers. They’re criticized for letting their children eat junk food in an attempt to head off meltdowns and self injury or for feeding them an overly crunchy diet. They’re criticized for neglecting their children’s health conditions regardless of how helpless they are in getting proper care, or of spending too much time talking about and attending to health. They’re criticized for giving too much attention to earning a living to dig out from under the tombstone of “disability debt,” or of neglecting their work and finances to be with their disabled children.

But I think the tactics are just a cheap and easy way of feigning concern for a disabled child while simultaneously abandoning them. It’s a dirty game. The bystanders get their cake—or so they think: a life free of the “burden” of disability. And they eat it too—or so they think: they can try to convince themselves and those around them that they’re not simply shallow and apathetic.

Continue reading "Part 3 Grist for the Mill for the Turning of Backs: When Family Defects from the Defective" »


Dengvaxia Vaccine Controversy In Philippines

Dengvaxia
Note: Thank you to AHRP for this report on the controversial Dengue fever vaccination program in the Philippines. Even if you are fully pro-vaccination, this story should make you pause for a moment or several.  Children ages 2 - 5 ran a risk of contracting Dengue fever post vaccination. This reminds us of the MMR data that showed a higher autism risk in African American males under the age of 3 - data that was scrubbed clean.

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This is a developing news story focusing on the corruption of industry-initiated government vaccination policies. The case involves Sanofi and the launching of its Dengvaxia vaccine in a massive school-based Dengvaxia vaccination campaign in 830,000 Philippino school children.

The World Health Organization reports that dengue, a virus transmitted by mosquitoes, is endemic in 100 countries, and the number of reported dengue cases has skyrocketed. In 1996, less than half a million (0.4); in 2005, 1.3 million; in 2010, 2.2 million; and in 2015, there were 3.2 million reported cases.

Sanofi Pasteur tested its vaccine Dengvaxia (CYD-TDV) in two parallel Phase 3 randomized trials (June 2011 – March 2012). CYD14 was tested in 5 Asian countries (Indonesia, Malaysia, Philippines, Thailand, and Viet Nam), in 10,275 children aged 2–14 years. CYD15 was conducted at in 5 Latin American countries (Brazil, Colombia, Honduras, Mexico, and Puerto Rico, in 20,869 children aged 9–16 years.

But Sanofi failed to examine the reason that young children aged 2 to 5 were at increased risk of severe dengue infection; the company encouraged the Philippine government to initiate a massive, school-based Dengvaxia vaccination program. One year after 830,000 children in the Philippines were vaccinated, and a major scandal erupted in the Philippines, the World Health Organization changed its initial equivocating recommendation (by the same Global Advisory Committee on Vaccine Safety) regarding Sanofi’s dengue vaccine, Dengvaxia:  Read more here.


The 12 Days of Skyhorse Publishing Day 12 The Age of Autism

12 daysWe'd like to express our gratitude to Tony Lyons, Publisher at Skyhorse Publishing in New York City. Skyhorse is one of the fastest growing independent publishers in America and one of the few to tackle the toughest, most controversial topics in health and autism. For the next 12 days, we'll be creating a list of books that we hope will interest you. Some will be very familiar, like those from Dan, Mark and me (Kim) and others we hope will be new sources of information and stories to help you navigate your family's autism journey.

Today is day 12 of 12 and I thought it only fitting to feature the book that shares the name with our site. Dan Olmsted and Mark Blaxill drew an exquisite map of the autism epidemic. Sadly, much of the world is unwilling to acknowledge the man made epidemic that threatens to change the fabric of our nation as boys are affected in such numbers that our socio-economic systems will feel a seismic shift. But this is America. So carry on friends. Buy your holiday gifts. Think about which TV show to binge watch next. Wait for the next Apple phone. There's nothing to see after all. In the AGE OF AUTISM.....

The Age of Autism bookDay 12: The Age of Autism by Dan Olmsted and Mark Blaxill

Much of the public discussion about autism has missed the point about the possible causes. To solve this question, two writers began digging into the history of other degenerative neurological disorders. Their research led them to discover incredible and previously unacknowledged links between a strain of syphilis which left suffers raving mad, the spike in incidence of schizophrenia during the Industrial Revolution, and the hidden commonalities between the parents of the first children diagnosed with autism in the 1930s.

The Age of Autism connects these dots to form a startling new thesis: behind each of these disorders – and many more – was exposure to mercury, the most toxic non-radioactive substance known to man.





The Set Up Martin WalkerDay 11: The Setup by Martin Walker

In 1988, the British government launched the Measles, Mumps and Rubella (MMR) vaccine, even though central figures knew that the vaccine could cause brain damage, autism, and other problems.

The Setup traces the extended efforts made by drug companies, with help from the British government, to cover up their responsibility for putting a vaccine known to be damaging on the market. It details the way public relations companies, social media, legal teams, judges, and reporters all utilized covert media tactics and public statements to deceive, ultimately leading to the British General Medical Council (GMC) initiating the famous trial against Andrew Wakefield, Professor Walker-Smith, and Dr. Simon Murch. The vaccine was on the market for over four years, but the parents of the nearly 1,600 affected were not only excluded from that trial but are still awaiting their day in court. Instead, they have all had to shoulder an immense financial burden and many have become the subject of court actions over spurious charges. The trial also destroyed Wakefield’s reputation―despite the fact that within months, a high court judge declared Walker-Smith innocent on the grounds that the GMC panel, acting as jury, had misunderstood the evidence.

Any parent whose child has become sick after a vaccine will appreciate the dedication of investigator Martin J. Walker, and his exposure of a cover-up the British government and pharmaceutical companies hoped to hide forever. Available Spring 2018.

Continue reading "The 12 Days of Skyhorse Publishing Day 12 The Age of Autism" »


GSK Advocates Gardasil for Boys and Cervarix for Girls in Confidential Communication to UK Vaccine Committee

In a remarkable response to a Freedom of Information request to the UK Joint Committee on Vaccines and Immunisation by Angus Files the committee have published the following information:

 

 Section 43 – Commercial interests


The fact that GSK is advocating a gender-neutral program using Cervarix in girls and
Gardasil in boys is confidential and commercially sensitive, and disclosure of GSK’s
position would prejudice the commercial interests of GSK:


If details of GSK’s position on advocating a gender neutral programme were
disclosed in response to the request, it would be accessible to GSK’s competitors,
who would gain insight into GSK’s development plans and strategy with respect to
the market positioning of Cervarix in the UK. In a normal competitive environment,
GSK’s competitors would not have this insight. GSK does not have similar insight
into its competitors’ strategy and development plans, and therefore disclosure of
GSK’s position puts GSK at a competitive disadvantage. This information is therefore
exempt from disclosure under Section 43 of the Act.


GSK’s views on the cost effectiveness of a gender-neutral program using Cervarix in
girls and Gardasil in boys is confidential and commercially sensitive, and disclosure
of GSK’s position would prejudice the commercial interests of GSK:
GSK’s comments on the cost effectiveness of a gender neutral programme and the
reduced cost in girls when using Cervarix instead of 4vHPV reveal GSK’s potential
strategy with respect to the market positioning and pricing of its Cervarix product. In
a normal competitive environment, GSK’s competitors would not have this insight.
GSK does not have similar insight into its competitors’ pricing and market positioning
strategy, and therefore disclosure of GSK’s position puts GSK at a competitive
disadvantage. This information is therefore exempt from disclosure under Section 43
of Act.

Open scientific exchange:
GSK has shared its innovative ideas on a gender neutral program with the JCVI in
the spirit of open and honest scientific dialogue, with the aim of generating
discussion on how to deliver a comprehensive and cost effective protection to the
public. Disclosure of this information would discourage GSK from sharing such
information and innovative ideas with the JCVI freely in the future.


Public interest:
It is in the public interest for a normal competitive environment to be maintained, for
example so that potential suppliers can compete fairly and competitively in a future
public procurement process and the procuring authority can get the best possible
deal for the public purse. It is also in the public interest that open scientific exchange
is maintained, so that GSK and its competitors can share innovative ideas with the
JCVI without fear of their commercially sensitive and confidential information being
disclosed publicly. 

The accompanying heavily redacted letter discloses concerning a recent study (phase III PATRICA)  of the efficacy of Cervarix for women:

The validity of this data has been challenged as it is based on one study only and follow up time was limited to four years

The source of the criticism has been redacted.

 

 


Slate On Gardasil Inadequate Safety Testing (No It's Not April 1st)

Vioxx now gardasilWhen I was a 28 year old sales exec, my boss, mentor and dear friend taught me a phrase that I've used in all areas of my life, especially with my girls. "Don't punish progress,"  When there's a positive, don't poop on it with a qualification or indication that the progress isn't enough or worse with a negative.  So when I read this opening from Slate.com, I had to pull back a bit. (Thanks Ginger Taylor for the heads up on this article.)

There’s no evidence that the HPV vaccine causes serious harm, but an investigation shows the trials weren’t designed to properly assess safety.

Oh, the heck with it. So, if the studies were not designed to properly assess safety OF COURSE THERE'S NO EVIDENCE THAT THE HPV VACCINE CAUSES SERIOUS HARM!  This is exactly what happened at Simpsonwood regarding autism and vaccines. It's why Poul Thorsen is having tea with a mermaid in Denmark.  No harm? Sure, except for the plethora of severely paralyzed, injured and deceased victims.

Read Mark Blaxill's series on the CDC/Merck partnership that created Gardasil titled, "License to Kill."

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On a sunny autumn day three years ago, when Kesia Lyng was 30, she had a visit from her youngest sister, Eva. The two were close, and as they sat at the kitchen table in Lyng’s apartment, Eva confronted her chronically ill sibling with a painful fact: “You almost can’t take care of your own kids,” she told her. “You can’t keep pushing yourself so hard.”

Lyng, who was living with her husband and their two children in a lusterless part of Copenhagen, Denmark, had been struggling for years with inexplicable health problems: joint and muscle pains that came and left, powerful headaches, and a crushing exhaustion that even copious amounts of sleep could not cure. She was working part-time in the kitchen of her daughter’s kindergarten, the latest in a string of odd jobs. But her sick days had begun to multiply again. Often she would call her husband at work, sobbing from weariness, and ask to be picked up. At home, she was drained, with no energy to clean or cook or tuck the kids in bed. In her medical records, which she shared with me, her doctor noted that she was “having a very difficult time” and that she worried about losing her job if she asked for a sick leave.

Continue reading "Slate On Gardasil Inadequate Safety Testing (No It's Not April 1st)" »


The 12 Days of Skyhorse Publishing Day 11 The Setup: How Corporate Greed Damaged Thousands of Children and Censored Andrew Wakefield

12 daysWe'd like to express our gratitude to Tony Lyons, Publisher at Skyhorse Publishing in New York City. Skyhorse is one of the fastest growing independent publishers in America and one of the few to tackle the toughest, most controversial topics in health and autism. For the next 12 days, we'll be creating a list of books that we hope will interest you. Some will be very familiar, like those from Dan, Mark and me (Kim) and others we hope will be new sources of information and stories to help you navigate your family's autism journey.

The Set Up Martin WalkerDay 11: The Setup by Martin Walker

In 1988, the British government launched the Measles, Mumps and Rubella (MMR) vaccine, even though central figures knew that the vaccine could cause brain damage, autism, and other problems.

The Setup traces the extended efforts made by drug companies, with help from the British government, to cover up their responsibility for putting a vaccine known to be damaging on the market. It details the way public relations companies, social media, legal teams, judges, and reporters all utilized covert media tactics and public statements to deceive, ultimately leading to the British General Medical Council (GMC) initiating the famous trial against Andrew Wakefield, Professor Walker-Smith, and Dr. Simon Murch. The vaccine was on the market for over four years, but the parents of the nearly 1,600 affected were not only excluded from that trial but are still awaiting their day in court. Instead, they have all had to shoulder an immense financial burden and many have become the subject of court actions over spurious charges. The trial also destroyed Wakefield’s reputation―despite the fact that within months, a high court judge declared Walker-Smith innocent on the grounds that the GMC panel, acting as jury, had misunderstood the evidence.

Any parent whose child has become sick after a vaccine will appreciate the dedication of investigator Martin J. Walker, and his exposure of a cover-up the British government and pharmaceutical companies hoped to hide forever. Available Spring 2018.

Autism in HeelsDay 10: Autism in Heels by Jennifer O'Toole

Autism in Heels, an intimate memoir, reveals the woman inside one of autism’s most prominent figures, Jennifer O'Toole. At the age of thirty-five, Jennifer was diagnosed with Asperger's syndrome, and for the first time in her life, things made sense. Now, Jennifer exposes the constant struggle between carefully crafted persona and authentic existence, editing the autism script with wit, candor, passion, and power. Her journey is one of reverse-self-discovery not only as an Aspie but--more importantly--as a thoroughly modern woman. Available Summer 2018.

Continue reading "The 12 Days of Skyhorse Publishing Day 11 The Setup: How Corporate Greed Damaged Thousands of Children and Censored Andrew Wakefield " »


Part 2 Grist For the Mill For the Turning of Backs: When Family Defects from the Defective

Deliverance painting
Teresa Elliot
, “Deliverence”

Grist For the Mill For the Turning of Backs: When Family Defects from the Defective

Part 2

Read part 1 here.

By Adriana Gamondes

Bearers of the Unbearable Bear

If bystanders or the professionals who originally diagnosed our once catastrophically disabled children would now have trouble believing how they’ve progressed, that’s not our problem. It’s a problem of institutional theory of cause. If you believe that autism is genetic, lifelong and static or a matter of Freudian phallic substitution, then our kids are miracles and my husband and I are living gods.

That’s right. We’re deities. We cause autism with our minds. We can also make it disappear through divine intervention.  Bow down before us, ye mortals.

But if you believe autism is a form of chemical brain injury— an acquired, man-made, industrial-age affliction which can occasionally improves due to non-psychotropic, integrated medical interventions— then we’re just damned lucky.

Lucky relative to the many individuals whose injuries are far too severe to recover or whose families can’t afford it. Lucky relative to the horrendously high death toll among the afflicted. Lucky relative to being at war.

My husband and I manage the combat pretty well most of the time. You don’t curl up and give way to despair while a battle is still raging. Instead we “despair of” certain circumstances or conduct in a sort of “What hath God wrought in man?” kind of way. There’s no time for sadness. We have children to save and blessings to count. One blessing is our kids’ significant recoveries. It’s good news. But our good news comes with bad news about how our once non-verbal, once seriously ill, once severely disabled children were injured to begin with. We’re the bearers of more bad news regarding the risks our children still face. To our despair, we’re getting shot for it regular intervals.

What adds to the despair is that sometimes misguided attacks come from those within our own clan, from those who believe they mean well, who might dote over typical kids, cry over lost puppies in the pound or the plight of landmine victims half a world away. Some may even occasionally be generous with material resources, but never with time. Not the time it takes to read the books and studies that explain, nor the time it takes to get to know the children at the center of so much unwanted drama.

But we don’t hate the people who’ve caused these dramas or who’ve ridden roughshod over our children’s tragedies in the past.  What we hate is the drama and the tragedy. I also hate going into details because I hate the details. I hate having to put anything related in clever terms to make it digestible or readable.

 If I had to give one reason why my husband and I haven’t been able to bring ourselves to see or speak to the individuals who most recently maligned us or their enablers, it’s because the mere act of having to defend ourselves also requires dredging up memories of the worst periods of the children’s lives that seem to come with a soundtrack of screaming souls in purgatory.   It’s as grim as watching the sun rise on three hours sleep for four years and made worse by having to go through it under the gaze of people who refuse to understand. 

And now the same onlookers are having a problem because the kids play a hand of poker to decide who has to wash the dishes, and because they’re expressive and empathic and charming in ways that defy previous diagnoses.

But our children aren’t out of the woods yet.  That’s probably another core reason we can’t face the snipers at the moment. If certain individuals judged and blamed in the face of past struggles, if they’ve already said or done terrible things in periods of grief and difficulty,  what could we expect from them if, God forbid, any of the disasters that are statistically so common in autism befell our children in the future? 

For the moment, the twins’ symptoms have become hazy and are wrapped in a lot of typical child behavior, but still surface enough to make them hard to be around for those who look to children to amuse them and provide them with reflections of family pride and golden projections of hope and unfettered potential. In some senses, the children’s risks are just beginning as they hit the teen stage. There are no guarantees of unfettered anything.  

Continue reading "Part 2 Grist For the Mill For the Turning of Backs: When Family Defects from the Defective" »


Autism Reflections and the Jesse Tree

The Jesse TreeBy Cathy Jameson

Every evening for the last two weeks, I’ve read a page from a book called The Jesse Tree.  Bought years ago when I was still teaching, the book rests on a shelf in my living room for most of the year.  Filled with hope and thoughtful reflections, I look forward to using it with my own children starting the first week of Advent.  The book is very simple and helps us remember the reason for the season.  Read aloud right before we eat dinner, the kids learn something from it.  Most days, I do, too. 

The book I have encourages conversations about Jesus, about His lineage, and about how we’re called to serve others in His name.  The messages are quick and concise, and the symbols that accompany each story are meaningful as well.  The very first symbol is a family tree.  The tree’s branches are empty on day 1, but the excitement of which story and which symbol will be next keeps my kids interested.  Ronan isn’t as in tune as his siblings are, and he offers no input when I ask the kids about what they think the next story will be, but he sits and listens to the chatter around the table each night. 

One message that popped off the page at me on Tuesday evening had me going back to meditate on the passage and the short prayer that accompanied that day’s devotion.  The reading was from Exodus, the reflection was about Moses and the people of Israel, and the symbol was the Ten Commandments.  But it was something else that the author stated that caught my attention: “People live in the kind of society they build.” 

How true. 

As a child, the society that I envisioned I’d be living in as an adult is much different than the one I am living now.  Plus, never did I ever think I’d be part of two societies–one where my typical kids hang out and one where my child with special needs hangs out.  Sure, we crossover, but many times Ronan will stay in his own world while his siblings frolic and thrive in another.  As a family, we try to bridge the two societies as much as we can.  Ronan joins the siblings at their sporting events.  They join him for some of his therapy sessions.  They share some time together which we all find inspiring.  Some things shouldn’t be shared, though, like when Ronan becomes aggressive and attempts to pull his sisters’ hair.  We work through those terrible times always praying that positive encounters will be right around the corner. 

As a child of the 70s, I knew nothing about autism.  As a teen in the 80s, I still hadn’t heard of the disorder.  As a teacher in the late 90s, I had yet to see a student who struggled like so many children do today.  By the 90s, I’d finally heard of autism, but it wasn’t until the next decade did my son’s autism introduce me to a society where I have become a long-term resident.   

Thinking about who’s helped me find my way in a place where I had no direction and that I had desire to be, I recalled past conversations with other newbie parents.  I remembered other parents, the veterans of the community, and their words of wisdom.  I also thought about the groups and companies that helped me learn how to help Ronan.  Honored to serve others, each person I’d encountered had become a beacon for me.  Their acts of kindness were forever etched in my heart, and each one is still very much cherished by me. 

Continue reading "Autism Reflections and the Jesse Tree" »


CDC Chief and Financial Conflicts

FitzgeraldThe swamp sure is full still.....  CDC Director can't work on matters regarding Opioids and Cancer - and  is hobnobbing with Bill and Melinda Gates. Can we get her to recuse herself from all things autism? Wait, CDC has already done that as an agency. Wouldn't Dan have had a field day this story?  BTW, Fitzgerald has it backward - you get rich in industry AFTER you leave CDC. Ask Julie Gerberding.  

AofA's Editor at Large Mark Blaxill has written numerous posts about the CDC. Here are three classics from our exclusives you might want to revisit. The swamp has been overflowing for a very long time with no draining in sight.

Mark Blaxill: Lies, Damned Lies and CDC Autism Statistics

What Did the CDC Know And When Did They Know It (part 1)

What Did the CDC Know and When Did They Know It? (part 2)


WaPo: ATLANTA — After five months in office, President Trump’s new director of the Centers for Disease Control and Prevention has been unable to divest financial holdings that pose potential conflicts of interest, hindering her ability to fully perform her job.

Brenda Fitzgerald, 71, who served as the Georgia public health commissioner until her appointment to the CDC post in July, said she has divested from many stock holdings. But she and her husband are legally obligated to maintain other investments in cancer detection and health information technology, according to her ethics agreement, requiring Fitzgerald to pledge to avoid government business that might affect those interests. Fitzgerald provided The Post with a copy of her agreement.

Last week, Sen. Patty Murray (Wash.), the senior Democrat on the Senate committee that oversees CDC, wrote that Fitzgerald is raising questions about her ability to function effectively.

“I am concerned that you cannot perform the role of CDC director while being largely recused from matters pertaining to cancer and opioids, two of the most pervasive and urgent health challenges we face as a country,” Murray wrote.  Read more here.